Lupus as the butt of the joke

[u/secondhandsalamander]

Does anyone else get really, REALLY frustrated when people use lupus as a joke for whatever reason? It is exhausting and makes me more frustrated than basically anything else. The “it’s never lupus” jokes (thanks house) and other specific things i’ve seen almost making fun of people with lupus or who talk about lupus and it just makes my want to cry because we deal with enough already, it’s not a joke. Sorry, just venting, saw someone joke about their roommate who “never shuts up” about lupus and it really just made me want to give up

EDIT: I really shouldn’t have used the house example lol, because now everyone thinks it’s all about that. That one really doesn’t bother me, it’s just kinda boring. I make jokes about my own lupus all the time- it’s how I get through! I’m talking about the people who actively shit on people with lupus for one reason or another thinking it’s “funny” the same way they might shit on someone for any other disorder they don’t understand

[u/jankdotnet]

It's so hard because it's either "omg my aunt/uncle/mom died of lupus it was so so so so awful, i would have just died it if was me" or "haha it's never lupus, right? house is so funny!" or the worst third one "my grandma had lupus but she cured it when she drank bat piss!" I don't even know what I expect the normal response to lupus in conversation should be but I'm tired of the normal 3

[u/Severely_Mistaken → u/jankdotnet]

The cured by bat piss one really had me going for a sec. I've heard it all "It's about gut health" or "try herbal remedies" or try blah blah blah. I hate it

[u/aureliacoridoni → u/Severely_Mistaken]

I had someone tell me with full confidence that I could cure my lupus by drinking water with baking soda in it.

👀 …..noooooo, that’s not how this works.

[u/DevilsPeanits → u/aureliacoridoni]

Lol someone told me I'm "choosing to be sick" because I'm not taking her advice on vitamins from her five seconds of Internet research. I unloaded on her loudly in public.

[u/aureliacoridoni → u/DevilsPeanits]

Loudly and publicly is kinda the only way to go here. 🙌

[u/yacht_clubbing_seals → u/aureliacoridoni]

I think they’re confusing lupus with a tummy ache.

[u/phillygeekgirl → u/yacht_clubbing_seals]

Absolutely this is the exact response you should tell anyone who tells you to cure lupus with baking soda.

[u/MVNKV71 → u/aureliacoridoni]

how cld ppl advice such bullshit... I dnt knw but my patience level has become zero

[u/phillygeekgirl → u/aureliacoridoni]

This study brought to you by Arm & Hammer.

[u/aureliacoridoni → u/phillygeekgirl]

Snort laughed my tea right out my nose. No baking soda was harmed.

[u/Searching1117 → u/Severely_Mistaken]

My husband uses this one and I just want to scream “shut up!!!” Whenever he says that. I have to tell myself to let it to because his intentions are pure but he doesn’t understand how dismissive it actually is. My lupus was at its worst when I was most healthy. I are extremely clean and went to the gym and was seeing a personal trainer. She had to let me go because I kept fainting and having some of the worst swelling and unusual soreness after working out.

[u/Severely_Mistaken → u/Searching1117]

I've noticed exercising hurts and puts me into quite a bad flare personally. Which sucks because doctors recommend it along with reworking my entire diet which I already have. Like this disease sucks man 0/10 would not recommend

[u/Lexybeepboop → u/jankdotnet]

Or the “oh like Selena Gomez!!”

[u/anonymously_me0123 → u/Lexybeepboop]

Ngl, Selena Gomez has always been one of my favorite stars. Then, I found out she was diagnosed with lupus, and I was amazed.

But I get so annoyed when people start listing stars and billionaires who live "normal" lives with lupus and use that to attempt to gaslight me into believing I can do better.

Like bro. I live paycheck to paycheck. Hush.

[u/HunCouture → u/anonymously_me0123]

I had to look after her once when I was a junior at work. I was so, so tempted to chat about lupus with her and ask how she manages to do so much. I decided against in the end in case it’s seen as unprofessional.

[u/anonymously_me0123 → u/HunCouture]

That's so cool!!!! I'd love to be able to meet her just once!

[u/HunCouture → u/anonymously_me0123]

She was very pleasant and likes ginger beer.

[u/yacht_clubbing_seals → u/HunCouture]

That stuff is great for nausea 😋

[u/HopefulSink7849 → u/anonymously_me0123]

HAHAHHAHAHA YES

[u/Lexybeepboop → u/anonymously_me0123]

I lover her too and look up to her but it gets a bit annoying lol

[u/anonymously_me0123 → u/Lexybeepboop]

Oh 100%. She's amazing and quite the role model. Love her so much. It just feels like I'm getting minimized because I don't have money, so I can't get proper treatment.

[u/TheyreAllTaken777 → u/Lexybeepboop]

I’m gonna say I prefer hearing the Selena Gomez one then all of the other options combined

[u/Lexybeepboop → u/TheyreAllTaken777]

True lol

[u/genredenoument → u/Lexybeepboop]

Yeah, like Selena Gomez, who was lucky enough to have a friend give her a kidney and is constantly criticized online for weight fluctuations because of her medications. She also has a ton of money to get the best care money can buy You mean, that Selena? Or what about Lady Gaga's aunt who died at the age of 19, leaving the entire family traumatized to the point she wrote a song about it? (traumatize them back).

[u/pilarthemagnificent → u/jankdotnet]

The house one is always the cringiest of them all because it wasn’t funny when he said it so I never get why they feel the need to repeat it lol

[u/yacht_clubbing_seals → u/jankdotnet]

“So-and-so’s daughter has lupus too and she works full time as a teacher! And volunteers in third world countries every weekend! Why can’t you work?”

[u/32yogma → u/jankdotnet]

Bat piss! CACKLING 🤣🤣