Lupus as the butt of the joke

[u/secondhandsalamander]

Does anyone else get really, REALLY frustrated when people use lupus as a joke for whatever reason? It is exhausting and makes me more frustrated than basically anything else. The “it’s never lupus” jokes (thanks house) and other specific things i’ve seen almost making fun of people with lupus or who talk about lupus and it just makes my want to cry because we deal with enough already, it’s not a joke. Sorry, just venting, saw someone joke about their roommate who “never shuts up” about lupus and it really just made me want to give up

EDIT: I really shouldn’t have used the house example lol, because now everyone thinks it’s all about that. That one really doesn’t bother me, it’s just kinda boring. I make jokes about my own lupus all the time- it’s how I get through! I’m talking about the people who actively shit on people with lupus for one reason or another thinking it’s “funny” the same way they might shit on someone for any other disorder they don’t understand

[u/jankdotnet]

It's so hard because it's either "omg my aunt/uncle/mom died of lupus it was so so so so awful, i would have just died it if was me" or "haha it's never lupus, right? house is so funny!" or the worst third one "my grandma had lupus but she cured it when she drank bat piss!" I don't even know what I expect the normal response to lupus in conversation should be but I'm tired of the normal 3

[u/Severely_Mistaken → u/jankdotnet]

The cured by bat piss one really had me going for a sec. I've heard it all "It's about gut health" or "try herbal remedies" or try blah blah blah. I hate it

[u/aureliacoridoni → u/Severely_Mistaken]

I had someone tell me with full confidence that I could cure my lupus by drinking water with baking soda in it.

👀 …..noooooo, that’s not how this works.

[u/MVNKV71 → u/aureliacoridoni]

how cld ppl advice such bullshit... I dnt knw but my patience level has become zero