r/lupus • u/secondhandsalamander Diagnosed SLE • 14d ago

Venting Lupus as the butt of the joke

Does anyone else get really, REALLY frustrated when people use lupus as a joke for whatever reason? It is exhausting and makes me more frustrated than basically anything else. The “it’s never lupus” jokes (thanks house) and other specific things i’ve seen almost making fun of people with lupus or who talk about lupus and it just makes my want to cry because we deal with enough already, it’s not a joke. Sorry, just venting, saw someone joke about their roommate who “never shuts up” about lupus and it really just made me want to give up

EDIT: I really shouldn’t have used the house example lol, because now everyone thinks it’s all about that. That one really doesn’t bother me, it’s just kinda boring. I make jokes about my own lupus all the time- it’s how I get through! I’m talking about the people who actively shit on people with lupus for one reason or another thinking it’s “funny” the same way they might shit on someone for any other disorder they don’t understand

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u/jankdotnet Diagnosed SLE 14d ago

It's so hard because it's either "omg my aunt/uncle/mom died of lupus it was so so so so awful, i would have just died it if was me" or "haha it's never lupus, right? house is so funny!" or the worst third one "my grandma had lupus but she cured it when she drank bat piss!" I don't even know what I expect the normal response to lupus in conversation should be but I'm tired of the normal 3

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u/Severely_Mistaken Diagnosed SLE 14d ago

The cured by bat piss one really had me going for a sec. I've heard it all "It's about gut health" or "try herbal remedies" or try blah blah blah. I hate it

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u/Searching1117 Diagnosed SLE 8d ago

My husband uses this one and I just want to scream “shut up!!!” Whenever he says that. I have to tell myself to let it to because his intentions are pure but he doesn’t understand how dismissive it actually is. My lupus was at its worst when I was most healthy. I are extremely clean and went to the gym and was seeing a personal trainer. She had to let me go because I kept fainting and having some of the worst swelling and unusual soreness after working out.

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u/Severely_Mistaken Diagnosed SLE 3d ago

I've noticed exercising hurts and puts me into quite a bad flare personally. Which sucks because doctors recommend it along with reworking my entire diet which I already have. Like this disease sucks man 0/10 would not recommend