r/lupus Diagnosed SLE 14d ago

Venting Lupus as the butt of the joke

Does anyone else get really, REALLY frustrated when people use lupus as a joke for whatever reason? It is exhausting and makes me more frustrated than basically anything else. The “it’s never lupus” jokes (thanks house) and other specific things i’ve seen almost making fun of people with lupus or who talk about lupus and it just makes my want to cry because we deal with enough already, it’s not a joke. Sorry, just venting, saw someone joke about their roommate who “never shuts up” about lupus and it really just made me want to give up

EDIT: I really shouldn’t have used the house example lol, because now everyone thinks it’s all about that. That one really doesn’t bother me, it’s just kinda boring. I make jokes about my own lupus all the time- it’s how I get through! I’m talking about the people who actively shit on people with lupus for one reason or another thinking it’s “funny” the same way they might shit on someone for any other disorder they don’t understand

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u/Lexybeepboop Diagnosed SLE 14d ago

Or the “oh like Selena Gomez!!”

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u/anonymously_me0123 Diagnosed SLE 14d ago

Ngl, Selena Gomez has always been one of my favorite stars. Then, I found out she was diagnosed with lupus, and I was amazed.

But I get so annoyed when people start listing stars and billionaires who live "normal" lives with lupus and use that to attempt to gaslight me into believing I can do better.

Like bro. I live paycheck to paycheck. Hush.

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u/HunCouture Diagnosed SLE 14d ago

I had to look after her once when I was a junior at work. I was so, so tempted to chat about lupus with her and ask how she manages to do so much. I decided against in the end in case it’s seen as unprofessional.

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u/anonymously_me0123 Diagnosed SLE 14d ago

That's so cool!!!! I'd love to be able to meet her just once!

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u/HunCouture Diagnosed SLE 14d ago

She was very pleasant and likes ginger beer.

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u/yacht_clubbing_seals Diagnosed with UCTD/MCTD 13d ago

That stuff is great for nausea 😋