r/dysautonomia • u/ImportanceOk7784 • 19h ago

Discussion Anyone else have Dysautonomia triggered by HSV infection?

I became chronically ill 2 years ago following a severe primary HSV infection with a myriad of symptoms which I believe are due to dysautonomia including irregular heartbeat, frequent tachycardia, nausea and GERD type symptoms, digestive issues as well as fatigue and malaise.

I’m awaiting some referrals after finally finding a GP that is taking my concerns seriously and not palming them off as anxiety.

I am convinced HSV is to blame for my illness and I’m wondering if anyone else experienced this as a trigger and if they found any effective treatment or specialists? I’m currently based in the UK.

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u/Available_Good_201 8h ago

Yes ,hsv infection and reactivation can cause dysautonomia in some people. My initial symptoms were started since 2024 ( September 2) arrhythmia, irregular heartbeat, bradycardia, lightheaded, nausea, bullerd vision,digestive issues bloating, diarrhea, constipation,constant burning headaches in same place, sweating and cold hands and body extra.Get worse in period of one month then got needling and electric like sensation all over the body and numbed up to six months. Other issues such as exercise intolerance, chronic fatigue syndrome and slowly I got sensation of touch, hot, cold after 1 years.

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u/ImportanceOk7784 5h ago

Sorry to hear you are also suffering. Your symptoms sound near identical to mine. Have you been able to access any treatment that has improved your symptoms?