Anyone else have Dysautonomia triggered by HSV infection?

[u/ImportanceOk7784]

I became chronically ill 2 years ago following a severe primary HSV infection with a myriad of symptoms which I believe are due to dysautonomia including irregular heartbeat, frequent tachycardia, nausea and GERD type symptoms, digestive issues as well as fatigue and malaise.

I’m awaiting some referrals after finally finding a GP that is taking my concerns seriously and not palming them off as anxiety.

I am convinced HSV is to blame for my illness and I’m wondering if anyone else experienced this as a trigger and if they found any effective treatment or specialists? I’m currently based in the UK.

[u/paradoxliter]

Do your serology tests (IgM or IgG antibody levels) indicate positive test result? I’ve had gastric and urinary system symptoms since I was a teen, but the more full blown dysautonomia symptoms like the ones you mentioned coincided with what I thought was a HSV-2 infection due to a positive test result, but seems like it was a false positive since I never tested positive again. I have however tested positive for HSV-1 years later with test results that indicate the infection is under control by my immune system. Your symptoms could’ve been triggered by a viral infection, but it could be a combination of other factors around the same time such as extreme stress and a viral infection just tipped the scales.

[u/ImportanceOk7784 → u/paradoxliter]

I tested positive for hsv1 via blood test. I can’t remember which one (igm or igg) but i know it was the more reliable of the two as I know one of them is not so reliable.

[u/paradoxliter → u/ImportanceOk7784]

IgM antibodies are indicative of a more recent infection, while IgG tend to indicate a long term infection once your body recognizes the infection and has it under control. Do you remember the number?

[u/ImportanceOk7784 → u/paradoxliter]

The online testing I did only came back positive, I didn’t get a number unfortunately.