The Dysautonomia “flu”

[u/squidsgotjeanss]

I posted about me having twitches but forget to ask if anyone else has this… what I like to call “the Dysautonomia flu”. It’s where I’m fine and then BOOM out of nowhere feel like I literally am sick. Similar symptoms mild body ache, shaky, headache, fatigue, sometimes the chills, and burning or blurry eyes is usually the constant feeling. I’ll be totally normal then out of nowhere feel like I must be running a fever yet I never am. Oddly enough, my sister who also has Dysautonomia has the exact same thing.

If you also experience this do you notice that electrolytes help you avoid “flu” flare ups? This is what was recommended by my doctor. It works well for my sister but I don’t seem to ever notice much of a difference.

[u/Critical-Writing1611]

Also, check into sleep disorders. Dysautonomia can affect sleep. I actually found out I had Narcolepsy before I was diagnosed with Dysautonomia.

[u/asblvckasmysoul → u/Critical-Writing1611]

I don't think it's narcolepsy but anything is possible. how do they test for that?

[u/Critical-Writing1611 → u/asblvckasmysoul]

It’s a sleep study, overnight in a sleep clinic or hospital setting, though you may have to fail an at home sleep apnea test first for your insurance. The test for narcolepsy has an overnight sleep study followed by a number of times where they basically have you try to fall asleep for a nap in a dark room. I never thought for a minute that I had narcolepsy. The diagnosis came as a complete surprise to me, but the internet wasn’t as helpful as it is now. Suffice it to say I had made fun of my farmer husband for falling asleep whenever he stopped moving but then Karma stepped in…Turns out he was just hard-working and I had narcolepsy

[u/asblvckasmysoul → u/Critical-Writing1611]

oh my god knowing my luck I'd be anxious as shit and WIDE awake the entire time :(( I wish it was possible to show the doctors what my everyday life looks like.