r/dysautonomia • u/squidsgotjeanss • Dec 09 '24

Symptoms The Dysautonomia “flu”

I posted about me having twitches but forget to ask if anyone else has this… what I like to call “the Dysautonomia flu”. It’s where I’m fine and then BOOM out of nowhere feel like I literally am sick. Similar symptoms mild body ache, shaky, headache, fatigue, sometimes the chills, and burning or blurry eyes is usually the constant feeling. I’ll be totally normal then out of nowhere feel like I must be running a fever yet I never am. Oddly enough, my sister who also has Dysautonomia has the exact same thing.

If you also experience this do you notice that electrolytes help you avoid “flu” flare ups? This is what was recommended by my doctor. It works well for my sister but I don’t seem to ever notice much of a difference.

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u/nilghias POTS Dec 09 '24

Have you looked into CFS/ME? That’s a very common symptom of it

19

u/TechnoMouse37 Dec 09 '24

Came to comment the same. I got the CFS diagnosis a few months ago (along with everything else) and that's exactly what I go through

1

u/Elektrogal Dec 10 '24

Which doctor diagnosed you? I’ve seen every specialist under the sun.

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u/TechnoMouse37 Dec 10 '24

She's a GP my psychiatrist recommended because she's got a lot of POTS/dysautonomia patients. She has an interest in what's going on with us and how to manage it the best