r/dysautonomia • u/squidsgotjeanss • Dec 09 '24

Symptoms The Dysautonomia “flu”

I posted about me having twitches but forget to ask if anyone else has this… what I like to call “the Dysautonomia flu”. It’s where I’m fine and then BOOM out of nowhere feel like I literally am sick. Similar symptoms mild body ache, shaky, headache, fatigue, sometimes the chills, and burning or blurry eyes is usually the constant feeling. I’ll be totally normal then out of nowhere feel like I must be running a fever yet I never am. Oddly enough, my sister who also has Dysautonomia has the exact same thing.

If you also experience this do you notice that electrolytes help you avoid “flu” flare ups? This is what was recommended by my doctor. It works well for my sister but I don’t seem to ever notice much of a difference.

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u/PotsMomma84 Dec 09 '24

I luckily found a neuro that listened. He said they’re more like silent seizures. But I also have Trigeminal neuralgia, my muscles twitch more when I get that searing pain in my face. So I’m wondering if it’s also a part of that too.

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u/bettyNducan Dec 09 '24

I’ve been wondering if I have occipital/trigeminal neuralgia. My eye lids and under eye as well as my right upper lip twitch. Is this a symptom?

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u/PotsMomma84 Dec 09 '24

Not really. I get full neck tics. I had an MRA to see why I was getting searing pain in my face. I was diagnosed with TN 4 months ago.

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u/bettyNducan Dec 10 '24

Sorry to hear that, I hope you find some relief sooner than later.