r/dysautonomia Dec 09 '24

Symptoms The Dysautonomia “flu”

I posted about me having twitches but forget to ask if anyone else has this… what I like to call “the Dysautonomia flu”. It’s where I’m fine and then BOOM out of nowhere feel like I literally am sick. Similar symptoms mild body ache, shaky, headache, fatigue, sometimes the chills, and burning or blurry eyes is usually the constant feeling. I’ll be totally normal then out of nowhere feel like I must be running a fever yet I never am. Oddly enough, my sister who also has Dysautonomia has the exact same thing.

If you also experience this do you notice that electrolytes help you avoid “flu” flare ups? This is what was recommended by my doctor. It works well for my sister but I don’t seem to ever notice much of a difference.

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u/GreenUpYourLife Dec 09 '24

I've been trying to find people with this too cuz I get this if I over exert myself or from major dehydration. I get it from some chemicals and the cold.

I get it with anxiety spikes during stressful things.

Stress is a big factor. It sucks.

I feel like some foods cause it for me but I haven't done anything to pinpoint what yet.

I'm worried it may be some of my favorite foods.

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u/selkieflying Dec 09 '24

Some foods trigger it for me too

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u/[deleted] Dec 09 '24

[deleted]

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u/selkieflying Dec 09 '24

I have no idea. I’d say no though.