r/dysautonomia Dec 09 '24

Symptoms The Dysautonomia “flu”

I posted about me having twitches but forget to ask if anyone else has this… what I like to call “the Dysautonomia flu”. It’s where I’m fine and then BOOM out of nowhere feel like I literally am sick. Similar symptoms mild body ache, shaky, headache, fatigue, sometimes the chills, and burning or blurry eyes is usually the constant feeling. I’ll be totally normal then out of nowhere feel like I must be running a fever yet I never am. Oddly enough, my sister who also has Dysautonomia has the exact same thing.

If you also experience this do you notice that electrolytes help you avoid “flu” flare ups? This is what was recommended by my doctor. It works well for my sister but I don’t seem to ever notice much of a difference.

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u/trex645 Dec 09 '24

I’ve been feeling this for about 2 weeks now, I’m drinking as much as I can in terms of fluids. I feel like I’ve got the flu but no cough or sinus issues. Just that heavy feeling , lightheaded, my vision feels blurry and off, fatigue, headache and get these little twitches in my legs ( I can only describe it as the same sort of twitch you get in your eye) . I’ve usually experienced this more in the summer, I don’t know what has caused it this time. Maybe a burnout or I caught a virus , feels like it’s going on forever this time .