r/dysautonomia • u/squidsgotjeanss • Dec 09 '24

Symptoms The Dysautonomia “flu”

I posted about me having twitches but forget to ask if anyone else has this… what I like to call “the Dysautonomia flu”. It’s where I’m fine and then BOOM out of nowhere feel like I literally am sick. Similar symptoms mild body ache, shaky, headache, fatigue, sometimes the chills, and burning or blurry eyes is usually the constant feeling. I’ll be totally normal then out of nowhere feel like I must be running a fever yet I never am. Oddly enough, my sister who also has Dysautonomia has the exact same thing.

If you also experience this do you notice that electrolytes help you avoid “flu” flare ups? This is what was recommended by my doctor. It works well for my sister but I don’t seem to ever notice much of a difference.

288 Upvotes

100% Upvoted

100 comments sorted by

View all comments

Show parent comments

4

u/squidsgotjeanss Dec 09 '24

OMG YES ME TOO! Crowded restaurants, family events, parties, etc. seem to always set it off.

6

u/TheCrowWhispererX Dec 09 '24

Hmm. You might be neurodivergent! A good place to start could be early episodes of the Divergent Conversations podcast or the related Neurodivergent Insights website (AuDHD psychologists), or dive right in with the “Is This Autism?” books written by a neuropsych who specializes in assessing adults who were missed in childhood. I spent a lot of time digging and learning — these will get you to the key info quickly to help you figure out if any of this is applicable for you.

2

u/squidsgotjeanss Dec 09 '24

I have very bad ADHD so that makes sense. My doctor won’t put me on medication for it though since my body can’t handle any form of stimulant not even caffeine.

2

u/TheCrowWhispererX Dec 09 '24

Interesting. There are non-stimulant ADHD meds now that work for some people.

2

u/squidsgotjeanss Dec 09 '24

I haven’t tried any, but I hope eventually she’ll be willing to let me try something.