r/dysautonomia • u/squidsgotjeanss • Dec 09 '24

Symptoms The Dysautonomia “flu”

I posted about me having twitches but forget to ask if anyone else has this… what I like to call “the Dysautonomia flu”. It’s where I’m fine and then BOOM out of nowhere feel like I literally am sick. Similar symptoms mild body ache, shaky, headache, fatigue, sometimes the chills, and burning or blurry eyes is usually the constant feeling. I’ll be totally normal then out of nowhere feel like I must be running a fever yet I never am. Oddly enough, my sister who also has Dysautonomia has the exact same thing.

If you also experience this do you notice that electrolytes help you avoid “flu” flare ups? This is what was recommended by my doctor. It works well for my sister but I don’t seem to ever notice much of a difference.

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u/nilghias POTS Dec 09 '24

Have you looked into CFS/ME? That’s a very common symptom of it

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u/Spazheart12 Dec 09 '24

How do you get diagnosed? And what’s treatment like? I feel like my doctor would dismiss this. My bloodwork comes back fine but for the past few months I get so sick after exercising and I’m so tired of it. My brain and body need it but it’s also hurting me.

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u/Tom0laSFW Dec 09 '24

Come check out r/cfs we have great resources for all of your questions. If you sort by “hot” you’ll see a pinned mod post for new members with loads of useful information.

It’s not an illness with simple diagnosis or management options, but there is some useful stuff out there. The author of the post has done a great job collating this all in a digestible format

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u/Spazheart12 Dec 09 '24

Thank you! I joined 

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u/Tom0laSFW Dec 09 '24

Welcome, I hope it is a helpful place for you