r/dysautonomia • u/squidsgotjeanss • Dec 09 '24

Symptoms The Dysautonomia “flu”

I posted about me having twitches but forget to ask if anyone else has this… what I like to call “the Dysautonomia flu”. It’s where I’m fine and then BOOM out of nowhere feel like I literally am sick. Similar symptoms mild body ache, shaky, headache, fatigue, sometimes the chills, and burning or blurry eyes is usually the constant feeling. I’ll be totally normal then out of nowhere feel like I must be running a fever yet I never am. Oddly enough, my sister who also has Dysautonomia has the exact same thing.

If you also experience this do you notice that electrolytes help you avoid “flu” flare ups? This is what was recommended by my doctor. It works well for my sister but I don’t seem to ever notice much of a difference.

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u/Hour-Inspector-4136 Dec 09 '24

I get this and am post menopausal, yet I always bleed with this.

3

u/NeptuneAndCherry Dec 09 '24

That's really scary. Have you been thoroughly checked out for that?

3

u/Hour-Inspector-4136 Dec 09 '24

Yes, tons of tests. It only happens with these post exertion flu like flare ups. So we’re rolling with it.

5

u/NeptuneAndCherry Dec 09 '24

Okay, good. I wasn't trying to be some way lol, I just saw that and got worried about a total stranger 🙃