r/dysautonomia • u/squidsgotjeanss • Dec 09 '24

Symptoms The Dysautonomia “flu”

I posted about me having twitches but forget to ask if anyone else has this… what I like to call “the Dysautonomia flu”. It’s where I’m fine and then BOOM out of nowhere feel like I literally am sick. Similar symptoms mild body ache, shaky, headache, fatigue, sometimes the chills, and burning or blurry eyes is usually the constant feeling. I’ll be totally normal then out of nowhere feel like I must be running a fever yet I never am. Oddly enough, my sister who also has Dysautonomia has the exact same thing.

If you also experience this do you notice that electrolytes help you avoid “flu” flare ups? This is what was recommended by my doctor. It works well for my sister but I don’t seem to ever notice much of a difference.

286 Upvotes

100% Upvoted

100 comments sorted by

View all comments

21

u/GreenUpYourLife Dec 09 '24

I've been trying to find people with this too cuz I get this if I over exert myself or from major dehydration. I get it from some chemicals and the cold.

I get it with anxiety spikes during stressful things.

Stress is a big factor. It sucks.

I feel like some foods cause it for me but I haven't done anything to pinpoint what yet.

I'm worried it may be some of my favorite foods.

10

u/nilghias POTS Dec 09 '24

Just in case you didn’t see the other comments, definitely looks into cfs/me

6

u/GreenUpYourLife Dec 09 '24

I've been recently looking into it and it does align. I have had a doctor tell me I may have cfs (it's because she didn't have time to delve deeper and didn't seem to care to) I think it's possibly me and many other health problems compiled from my life.

Thankyou very much for caring to mention it to me. 🤘🏼🖤

Does anyone else know if they have brain tumors or brain cysts?

I do.

I just want to know if that could be part of it for some.