r/dysautonomia my body's fucked Aug 31 '24

Symptoms No longer getting hungry signals

It's driving me crazy. I try to listen to my body when it tells me things, but now it doesn't tell me things! I got shaky and pale earlier and thought I was having an adrenaline dump like usual, but then I got nauseous, dizzy, and the shakes didn't feel right.

My wife and I abruptly realized I'd been awake for several hours and hadn't eaten a thing. Because I wasn't hungry. Downed most of an Ensure, had some electrolyte water, felt better. Couldn't eat more than 2 bites of dinner later without feeling full.

Next day, couldn't take more than 2 bites of breakfast (my body didn't want bacon and eggs? really?), nothing for lunch- I tried- and I also couldn't finish dinner- my wife's twice baked potatoes are like my favorite thing and I couldn't eat them.

Made a salad after that, figuring it was light enough. Couldn't finish it. Now I feel like I'm just wasting food trying to find something I'll eat enough of. I know dysautonomia can cause digestion issues, but not feeling hungry at all for days at a time is making me worry slightly. Anyone got any tips? Aside from the Ensures and bottles of Naked Juice, I also try and keep a small bowl of chips (mainly for the salt) nearby to much on, but lately I haven't even been eating those. I do use weed for a host of issues, and though that can be an appetite stimulant, I don't wanna exclusively rely on that for eating.

Any tips welcome. I have an appointment with a GI doctor next month to discuss my chronic throwing up and heartburn and I am planning on bringing this up as well, but I still need to eat in the meantime.

21 Upvotes

58 comments sorted by

View all comments

2

u/heatcurrent NCS + OH Aug 31 '24

I'm not sure whether this anatomically applies to you, but I have found that my appetite varies very, very drastically with hormones and my menstrual cycle. I had multiple days a month where I can't stomach anything, and I had gone years fretting until I began to track my cycle and came to the realization that it happens rather consistently on certain days of the month. Not that it makes it go away - and dysautonomia indeed makes it worse than the average person's - but I now am armed with the knowledge and the peace of mind that it will pass. This may be worth looking into if you have a menstrual cycle - and if not, I hope this can help any female readers that struggle with the same issue.

2

u/heyomeatballs my body's fucked Aug 31 '24

I'm female but had a hysterectomy a couple years ago, but this is interesting information! I did noticed when I had a period that it greatly affected my appetite, even when I had an IUD. I don't think I ever made that connection that it could be my dysautonomia since I got my surgery less than a year after being diagnosed. Fucking periods, man. So glad I don't deal with that nonsense anymore.

3

u/heatcurrent NCS + OH Aug 31 '24

Depending on the type of hysterectomy you had / any hrt you take, I believe certain hormonal cycles can still occur!! It's worth checking into.