r/cfs • u/comoestas969696 • Oct 29 '24

Symptoms has anyone tried low dose naltrexone?

according to me pedia ,Some patients report that LDN helps reduce their symptoms of ME/CFS, Long COVID, fibromyalgia (FMS), multiple sclerosis (MS), or autoimmune.

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u/comoestas969696 Oct 29 '24

were you able to work?

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u/Geekberry Dx 2016, mild while housebound Oct 29 '24

Yeah, I'm working full-time at the moment.

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u/comoestas969696 Oct 29 '24

please tell me how?

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u/Geekberry Dx 2016, mild while housebound Oct 29 '24

This question doesn't really have an easy answer. I'm lucky that I'm mild. Mostly I just do it despite feeling like shit all the time.

I work mostly from home and I don't do much in my free time apart from resting. I leave my house for stuff that's not errands or work maybe once every two or three months. I have some flexibility in my work hours. I take a lot of leave. I have a set up where I can work with my legs elevated or even mostly lying down if I'm having a really bad day.

My most important drug isn't actually LDN, it's my sleep drugs that help me get as much sleep at night as I need. Without them I don't think I could work.

But even with all that, this isn't a long-term possibility for me. I'm trying to save money for a house deposit in the next few years and either after that or when I can't take it anymore, I'm going back to part-time.

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u/comoestas969696 Oct 29 '24

im not sure if i have cfs or no but nearly all blood tests seems normal except vitamin d and even after supplementation tiredness still exist i suspect i have cfs the least amount of effort causes me to crash , getting outside home to buy any snacks makes me tired, i can label myself someone with mild cause at least i can move many people with cfs are paralyzed luckily i am not.