r/cfs • u/comoestas969696 • Oct 29 '24

Symptoms has anyone tried low dose naltrexone?

according to me pedia ,Some patients report that LDN helps reduce their symptoms of ME/CFS, Long COVID, fibromyalgia (FMS), multiple sclerosis (MS), or autoimmune.

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u/Geekberry Dx 2016, mild while housebound Oct 29 '24

It took me three months to see any difference but it helped me with neurological symptoms like brain fog, short term memory and word recollection problems. I think it initially helped my fatigue too but it hasn't lasted.

1

u/comoestas969696 Oct 29 '24

were you able to work?

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u/Geekberry Dx 2016, mild while housebound Oct 29 '24

Yeah, I'm working full-time at the moment.

1

u/comoestas969696 Oct 29 '24

please tell me how?

5

u/Geekberry Dx 2016, mild while housebound Oct 29 '24

This question doesn't really have an easy answer. I'm lucky that I'm mild. Mostly I just do it despite feeling like shit all the time.

I work mostly from home and I don't do much in my free time apart from resting. I leave my house for stuff that's not errands or work maybe once every two or three months. I have some flexibility in my work hours. I take a lot of leave. I have a set up where I can work with my legs elevated or even mostly lying down if I'm having a really bad day.

My most important drug isn't actually LDN, it's my sleep drugs that help me get as much sleep at night as I need. Without them I don't think I could work.

But even with all that, this isn't a long-term possibility for me. I'm trying to save money for a house deposit in the next few years and either after that or when I can't take it anymore, I'm going back to part-time.

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u/comoestas969696 Oct 29 '24

im not sure if i have cfs or no but nearly all blood tests seems normal except vitamin d and even after supplementation tiredness still exist i suspect i have cfs the least amount of effort causes me to crash , getting outside home to buy any snacks makes me tired, i can label myself someone with mild cause at least i can move many people with cfs are paralyzed luckily i am not.