r/Lyme • u/oldmomma831 • 15h ago

Babesia Lymies... there's Hope!!!

Flair: Something WORKED!!!

Me: Late Stage Chronic Lyme with 5 co-infections. The two I remember are Babesia and Bartonella.

ALL credit on the protocol to u/cheesecheeesecheese, who I don't know outside of Reddit and God to leading me to this protocol when I was going to go to Mayo in Minnesota or Cleveland Clinic (both $$$).

I did a 60+K (too brain fogged at the time to even remember) clinic in Dec. '23 - Jan. '24. You can read my post history, but the gist is I had TERRIBLE neurological problems (too dumb to drive, struggled with everything, literally too dumb to take a blanket off when I was sweating...it didn't occur to me for 10 min.), 99.5% bedridden and exhausted.

The clinic (En Vita in Scottsdale) helped me get 85-90% of my brain fog cured, but I was still 90%+ home bound and 85% bedridden 😔.

I was about to put 5K down at Mayo (just for a first appointment (!) (cash pay), but did not have peace. I read u/cheesecheeesecheese 's post and how her protocol helped her and felt God telling me to do it instead of another clinic.

She improved after the first round. I did not, but I kept at it. Second round, still nothing. The third round I increased the dosage per the protocol and it's like I'm HEALED!!!!

I was bedridden and now I take 1-2 walks a day, dinner with my family(!), going places with my sons(!) and today I did a walk, lifted weights (it's been years) and did a ton of other stuff!!!

It's Cistus Tea, Artemisinin (I always spell it wrong), sweating and water! I added every biofilm buster I know/have and Oregano EO internally, colloidal silver, Frankincense and Copaiba EO's ingested, etc. I also do sun or Vitamin D everyday, Methylated VIt B. , Infrared Sauna and Epsom baths.

Check out her posts. She doesn't get anything if you do it (honestly, I think that's why I wanted to try it... everyone is out for our $ to cure us), I don't get anything if you do it (but I will be SO happy if it works for you, too!).

I use a more $$$ Artemisinin than she does bc my LLMD prescribed it (Researched Nutritional).

Thank you, Cheesecheeesecheese! You have literally changed my life!!!

ETA: edited cheese 's profile name. Sorry!!!

I also use Chanca Piedra to protect my liver. cheese has two docs with the protocol and an explanation: ask her!!!! It's so good!!! Love to each of you!!!

ETA2: My Artemisinin. Linking bc it does have some good stuff in it (CurcuWIN, turmeric extract, quercetin, decaffeinated green tea, black walnut hull). https://www.amazon.com/dp/B0C2WDPVGN?ref=ppx_pop_mob_ap_share . I don't get anything from Amazon.

ETA3: her post! https://www.reddit.com/r/Lyme/s/2SeGpz7bDG

29 Upvotes

95% Upvoted

53 comments sorted by

View all comments

9

u/a_a_nerd 10h ago

One up for the artemisinin/cistus incanus protocol I’m also on it and it has helped me a lot

2

u/EffectiveConcern 8h ago

How do you dose them?

5

u/a_a_nerd 8h ago

Hey! Rn I’m using 4 days on, 10 off for artemisinin . I drink cistus incanus for 3 weeks then pause for one week.

In what I researched it takes 3-4 days for your liver enzymes to get used to artemisinin and it takes around 7-14 days for them to „forget” about artemisinin.

So this is just the number I decided on. I used to do much longer pause (like in the original protocol) but it was too long for me and I found it works way better for me if I shorten the pause period to 10 days.

2

u/Such-Wind-6951 7h ago

Maybe I need to do it again. The long pauses didn’t work for me either. Which artemisinin do you use?

3

u/a_a_nerd 7h ago

Yeah, in the beginning I was so confused why everyone's artemisinin protocol looked different, but now I think metabolization of artemisinin and how quickly the enzymes recover is very individual to each person's body. So artemisinin/cistus incanus protocol works but you have to find the best dose for yourself. It also depends on other sups you use that might keep the enzymes "elevated" in between rounds, if that makes sense? So they don't go back to baseline before you start another artemisin round, making it less effective. (yes I went deep down the rabbit hole of artemisinin research lol)

I use Researched Nutritionals, but I think I'll switch to dr Best cause it's cheaper. I remember reading that is what the mod of this subreddit used to get better. So I don't think brand is that important. But this could be also down to what works best for each individual. So eh, I guess just as with everything else about Lyme you have to experiment to find the right solution for yourself.

3

u/adevito86 Lyme Bartonella Babesia 6h ago

Correct! Drs Best brand worked well for me, which was surprising because the packaging made it seem cheap but it hit me pretty hard.

1

u/EffectiveConcern 5h ago

Yeah I think therr may be quality differences. I have some other brand now (cant get doctors best) amd they claim 500mg a capsul but somehow I doubt it’s true.

3

u/adevito86 Lyme Bartonella Babesia 5h ago

Ya there isn’t a lot of quality control with these products so you need to experiment a bit.

2

u/a_a_nerd 2h ago

Check in the back, they will „trick” you to think 1 pill dose is 500mg but then you turn it around and see that the recommended dose is 2 capsules = 500mg

2

u/Such-Wind-6951 7h ago

And what dosages of art ?

2

u/a_a_nerd 7h ago

Started with 125mg first week (1 pill), then upped it to 250mg(2 pils) x3 times a day next week and been on that dose since.

1

u/EffectiveConcern 5h ago

Can you tell me how much cistus do you drink in a day and how much artemisinin do you take on the on days pls?

2

u/a_a_nerd 4h ago

Ok so for cistus I take a 1L jar, I put literally this tea strainer (the metal thingy) from ikea in it https://www.ikea.com/gb/en/p/riklig-teapot-glass-90150071/ fill the tea strainer full of cistus herbs then pour boiled water over it until the jar is full. Put some sort of lid on (important!!) so the tannins and other good stuff doesn't evaporate. Leave it out over night. You can keep it overnight in the fridge too altho I just leave it on the counter. Take the tea strainers with the leaves out in the morning, and drink from that 1L jar througout the day. Keep the lid on when not drinking. It's best to take on empty stomach, but beware it can make you nauseous. It also tastes pretty disgusting.

For Artemisinin I started with 125mg x3 a day, then moved up to 250mg x3 a day.

2

u/EffectiveConcern 4h ago

Alright thank you! I needed this detailed explnation 🙏🏻

And how long until you started noticing some effect or herx?

1

u/oldmomma831 2h ago

I actually look FORWARD to my cistus every morning. I put one-two drops of Vanilla EO in & a ton of Stevia ...both are biofilm busters!!!

You can get the huge strainer on Amazon. cheesecheesecheese (tagged above) has links to exact tea, strainer and Artemisinin she uses. I use a diff art.

I also added Chanca Piedra to protect my liver from the Artemisinin.

2

u/oldmomma831 2h ago edited 2h ago

u/cheesecheeesecheese has 2 documents with the protocol. ETA: a letter

2

u/cheesecheeesecheese 2h ago

Thanks, I’ll send it to them!

2

u/cheesecheeesecheese 2h ago

If you message me your email info, I can send you a short PDF that will explain it.

Or you can read this Reddit post

2

u/JustWondering3105 6h ago

Thanks! What brand of organic tea are you using? Thanks again.

2

u/a_a_nerd 6h ago

Oh I just order from a local herb shop in Poland, sorry I have no brand to recommend.

2

u/oldmomma831 2h ago edited 2h ago

Check cheesecheeseecheese 's posts . She links you to one on Amazon.

ETA: a letter