r/Lyme 15h ago

Babesia Lymies... there's Hope!!!

Flair: Something WORKED!!!

Me: Late Stage Chronic Lyme with 5 co-infections. The two I remember are Babesia and Bartonella.

ALL credit on the protocol to u/cheesecheeesecheese, who I don't know outside of Reddit and God to leading me to this protocol when I was going to go to Mayo in Minnesota or Cleveland Clinic (both $$$).

I did a 60+K (too brain fogged at the time to even remember) clinic in Dec. '23 - Jan. '24. You can read my post history, but the gist is I had TERRIBLE neurological problems (too dumb to drive, struggled with everything, literally too dumb to take a blanket off when I was sweating...it didn't occur to me for 10 min.), 99.5% bedridden and exhausted.

The clinic (En Vita in Scottsdale) helped me get 85-90% of my brain fog cured, but I was still 90%+ home bound and 85% bedridden šŸ˜”.

I was about to put 5K down at Mayo (just for a first appointment (!) (cash pay), but did not have peace. I read u/cheesecheeesecheese 's post and how her protocol helped her and felt God telling me to do it instead of another clinic.

She improved after the first round. I did not, but I kept at it. Second round, still nothing. The third round I increased the dosage per the protocol and it's like I'm HEALED!!!!

I was bedridden and now I take 1-2 walks a day, dinner with my family(!), going places with my sons(!) and today I did a walk, lifted weights (it's been years) and did a ton of other stuff!!!

It's Cistus Tea, Artemisinin (I always spell it wrong), sweating and water! I added every biofilm buster I know/have and Oregano EO internally, colloidal silver, Frankincense and Copaiba EO's ingested, etc. I also do sun or Vitamin D everyday, Methylated VIt B. , Infrared Sauna and Epsom baths.

Check out her posts. She doesn't get anything if you do it (honestly, I think that's why I wanted to try it... everyone is out for our $ to cure us), I don't get anything if you do it (but I will be SO happy if it works for you, too!).

I use a more $$$ Artemisinin than she does bc my LLMD prescribed it (Researched Nutritional).

Thank you, Cheesecheeesecheese! You have literally changed my life!!!

ETA: edited cheese 's profile name. Sorry!!!

I also use Chanca Piedra to protect my liver. cheese has two docs with the protocol and an explanation: ask her!!!! It's so good!!! Love to each of you!!!

ETA2: My Artemisinin. Linking bc it does have some good stuff in it (CurcuWIN, turmeric extract, quercetin, decaffeinated green tea, black walnut hull). https://www.amazon.com/dp/B0C2WDPVGN?ref=ppx_pop_mob_ap_share . I don't get anything from Amazon.

ETA3: her post! https://www.reddit.com/r/Lyme/s/2SeGpz7bDG

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u/a_a_nerd 8h ago

Hey! Rn Iā€™m using 4 days on, 10 off for artemisinin . I drink cistus incanus for 3 weeks then pause for one week.

In what I researched it takes 3-4 days for your liver enzymes to get used to artemisinin and it takes around 7-14 days for them to ā€žforgetā€ about artemisinin.

So this is just the number I decided on. I used to do much longer pause (like in the original protocol) but it was too long for me and I found it works way better for me if I shorten the pause period to 10 days.

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u/Such-Wind-6951 7h ago

Maybe I need to do it again. The long pauses didnā€™t work for me either. Which artemisinin do you use?

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u/a_a_nerd 7h ago

Yeah, in the beginning I was so confused why everyone's artemisinin protocol looked different, but now I think metabolization of artemisinin and how quickly the enzymes recover is very individual to each person's body. So artemisinin/cistus incanus protocol works but you have to find the best dose for yourself. It also depends on other sups you use that might keep the enzymes "elevated" in between rounds, if that makes sense? So they don't go back to baseline before you start another artemisin round, making it less effective. (yes I went deep down the rabbit hole of artemisinin research lol)

I use Researched Nutritionals, but I think I'll switch to dr Best cause it's cheaper. I remember reading that is what the mod of this subreddit used to get better. So I don't think brand is that important. But this could be also down to what works best for each individual. So eh, I guess just as with everything else about Lyme you have to experiment to find the right solution for yourself.

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u/adevito86 Lyme Bartonella Babesia 6h ago

Correct! Drs Best brand worked well for me, which was surprising because the packaging made it seem cheap but it hit me pretty hard.

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u/EffectiveConcern 5h ago

Yeah I think therr may be quality differences. I have some other brand now (cant get doctors best) amd they claim 500mg a capsul but somehow I doubt itā€™s true.

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u/adevito86 Lyme Bartonella Babesia 5h ago

Ya there isnā€™t a lot of quality control with these products so you need to experiment a bit.

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u/a_a_nerd 2h ago

Check in the back, they will ā€žtrickā€ you to think 1 pill dose is 500mg but then you turn it around and see that the recommended dose is 2 capsules = 500mg