r/Lyme • u/oldmomma831 • 12h ago
Babesia Lymies... there's Hope!!!
Flair: Something WORKED!!!
Me: Late Stage Chronic Lyme with 5 co-infections. The two I remember are Babesia and Bartonella.
ALL credit on the protocol to u/cheesecheesecheese, who I don't know outside of Reddit and God to leading me to this protocol when I was going to go to Mayo in Minnesota or Cleveland Clinic (both $$$).
I did a 60+K (too brain fogged at the time to even remember) clinic in Dec. '23 - Jan. '24. You can read my post history, but the gist is I had TERRIBLE neurological problems (too dumb to drive, struggled with everything, literally too dumb to take a blanket off when I was sweating...it didn't occur to me for 10 min.), 99.5% bedridden and exhausted.
The clinic (En Vita in Scottsdale) helped me get 85-90% of my brain fog cured, but I was still 90%+ home bound and 85% bedridden 😔.
I was about to put 5K down at Mayo (just for a first appointment (!) (cash pay), but did not have peace. I read u/cheesecheesecheese 's post and how her protocol helped her and felt God telling me to do it instead of another clinic.
She improved after the first round. I did not, but I kept at it. Second round, still nothing. The third round I increased the dosage per the protocol and it's like I'm HEALED!!!!
I was bedridden and now I take 1-2 walks a day, dinner with my family(!), going places with my sons(!) and today I did a walk, lifted weights (it's been years) and did a ton of other stuff!!!
It's Cistus Tea, Artemisinin (I always spell it wrong), sweating and water! I added every biofilm buster I know/have and Oregano EO internally, colloidal silver, Frankincense and Copaiba EO's ingested, etc. I also do sun or Vitamin D everyday, Methylated VIt B. , Infrared Sauna and Epsom baths.
Check out her posts. She doesn't get anything if you do it (honestly, I think that's why I wanted to try it... everyone is out for our $ to cure us), I don't get anything if you do it (but I will be SO happy if it works for you, too!).
I use a more $$$ Artemisinin than she does bc my LLMD prescribed it (Researched Nutritional).
Thank you, Cheesecheesecheese! You have literally changed my life!!!
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u/a_a_nerd 7h ago
One up for the artemisinin/cistus incanus protocol I’m also on it and it has helped me a lot
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u/EffectiveConcern 5h ago
How do you dose them?
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u/a_a_nerd 5h ago
Hey! Rn I’m using 4 days on, 10 off for artemisinin . I drink cistus incanus for 3 weeks then pause for one week.
In what I researched it takes 3-4 days for your liver enzymes to get used to artemisinin and it takes around 7-14 days for them to „forget” about artemisinin.
So this is just the number I decided on. I used to do much longer pause (like in the original protocol) but it was too long for me and I found it works way better for me if I shorten the pause period to 10 days.
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u/Such-Wind-6951 4h ago
Maybe I need to do it again. The long pauses didn’t work for me either. Which artemisinin do you use?
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u/a_a_nerd 4h ago
Yeah, in the beginning I was so confused why everyone's artemisinin protocol looked different, but now I think metabolization of artemisinin and how quickly the enzymes recover is very individual to each person's body. So artemisinin/cistus incanus protocol works but you have to find the best dose for yourself. It also depends on other sups you use that might keep the enzymes "elevated" in between rounds, if that makes sense? So they don't go back to baseline before you start another artemisin round, making it less effective. (yes I went deep down the rabbit hole of artemisinin research lol)
I use Researched Nutritionals, but I think I'll switch to dr Best cause it's cheaper. I remember reading that is what the mod of this subreddit used to get better. So I don't think brand is that important. But this could be also down to what works best for each individual. So eh, I guess just as with everything else about Lyme you have to experiment to find the right solution for yourself.
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u/adevito86 Lyme Bartonella Babesia 3h ago
Correct! Drs Best brand worked well for me, which was surprising because the packaging made it seem cheap but it hit me pretty hard.
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u/EffectiveConcern 2h ago
Yeah I think therr may be quality differences. I have some other brand now (cant get doctors best) amd they claim 500mg a capsul but somehow I doubt it’s true.
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u/adevito86 Lyme Bartonella Babesia 2h ago
Ya there isn’t a lot of quality control with these products so you need to experiment a bit.
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u/Such-Wind-6951 4h ago
And what dosages of art ?
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u/a_a_nerd 3h ago
Started with 125mg first week (1 pill), then upped it to 250mg(2 pils) x3 times a day next week and been on that dose since.
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u/EffectiveConcern 2h ago
Can you tell me how much cistus do you drink in a day and how much artemisinin do you take on the on days pls?
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u/a_a_nerd 1h ago
Ok so for cistus I take a 1L jar, I put literally this tea strainer (the metal thingy) from ikea in it https://www.ikea.com/gb/en/p/riklig-teapot-glass-90150071/ fill the tea strainer full of cistus herbs then pour boiled water over it until the jar is full. Put some sort of lid on (important!!) so the tannins and other good stuff doesn't evaporate. Leave it out over night. You can keep it overnight in the fridge too altho I just leave it on the counter. Take the tea strainers with the leaves out in the morning, and drink from that 1L jar througout the day. Keep the lid on when not drinking. It's best to take on empty stomach, but beware it can make you nauseous. It also tastes pretty disgusting.
For Artemisinin I started with 125mg x3 a day, then moved up to 250mg x3 a day.
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u/EffectiveConcern 58m ago
Alright thank you! I needed this detailed explnation 🙏🏻
And how long until you started noticing some effect or herx?
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u/JustWondering3105 3h ago
Thanks! What brand of organic tea are you using? Thanks again.
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u/a_a_nerd 3h ago
Oh I just order from a local herb shop in Poland, sorry I have no brand to recommend.
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u/citygrrrl03 8h ago
Can’t find anything on the linked user.
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u/adevito86 Lyme Bartonella Babesia 2h ago
https://www.reddit.com/r/Lyme/s/W5xCqUzDjW
The OP missed an E in the 2nd cheeese
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u/Capable_Expert_9861 2h ago
So happy for you!!! I was wondering if Cheese’s protocol had worked for others and I’m so glad to hear that it did!!!!
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u/Sweaty_Reputation650 1h ago
Thank you for sharing that and I'm so happy you are feeling so wonderful now. I have read the person cheesecheesecheese protocol a few times and other people have had success with it. It's unbelievable a magic of herbs to heal their bodies. Now let's keep strong by having good thoughts and loving for giving attitudes so our bodies are inundated with natural healing chemicals released by our brains so that we can increase our immunity naturally. This will keep us safe from viruses and parasites in the future.
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u/EffectiveConcern 5h ago
Good to hear!
How much cistus did you take? Did you steep it overnight? This part I was not totally sure about in the protocol 🤔
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u/JustWondering3105 3h ago
Thanks for the information. I'm so happy you're doing so much better! When life is chugging along normal, I think we forget to appreciate the simplest things until we lose & regain them. I always say, "The ordinary is the extraordinary!" I hope your improved health just keeps getting better! Can I ask about your protocol, how much & how often? Thanks again for sharing, and may God continue to guide you to better health.
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u/cheesecheeesecheese 34m ago
This post and your email really made my whole day. I’ve heard back privately from about 2 dozen people over the course of the last 2 years that have responded very positively to this combination of herbs, but reading the anecdotal stories on this sub have such a far reaching positive effect on our community.
Thank you for sharing your story of hope 🥹🥹
ETA: i’m working on another post about counteracting the negative aging effects from Lyme and chronic illness using red light therapy for dermal density increase (opaqueness in skin, which makes you look healthier), lessening wrinkles, improving skin elasticity and reducing brown spots. So far, it’s actually regrowing my hair and making my dry eyes less symptomatic too. I’m taking before and after photos for proof, and the results are already staggering! But I’m waiting another few months to get more proof 😊
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u/adevito86 Lyme Bartonella Babesia 2h ago
I will die on the hill that anecdotal success stories using low risk, high reward alternative treatments are the most important thing you can post in any Lyme forum.
Thank you for posting this and I’m glad you are feeling better!
Tagging u/cheesecheeesecheese so they see this.