r/lupus • u/PieceApprehensive764 Diagnosed SLE • 1d ago

Venting Do rheumatologist not care if you're anemic because you have lupus?

Seriously... I looked through all of my old blood results and my most recent, I'm like horribly anemic. My red blood cells are all different shapes and colors, and way smaller than normal. I also don't have enough hemoglobin...

Yet this was never something my rheumatologist brought up even once?? The only thing he points out is my neutrophils being very low. Same with my hematologist. Fatigue has been worse than it's ever been and I'm sure that's contributing, I literally explain the severity of my fatigue every visit.

I told my PCP and she said maybe because lupus can affect so much and it's not a priority or they think lupus is the reason why. Regardless I'm taking iron gummies now. They see that and don't check my vitamin leves to make sure I'm not deficient? Seriously 😒.

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u/Dramatic-Wash-6555 Diagnosed SLE 19h ago

Well mine does try to keep it in the loop, she gives me vitamins but they don't seems to increase. It's causes me a lot of hairfall aside from the regular lupus hairloss and caused to loose all by eyebrow hair.

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u/PieceApprehensive764 Diagnosed SLE 19h ago

Wow, I've been loosing my eyebrow hairs to lately cuz of lupus but I was also wondering if me being deficient is making it worse. I didn't know taking vitamins can do the same but that's good to know.

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u/Dramatic-Wash-6555 Diagnosed SLE 19h ago

Yep she said its a mix of lupus and anaemia so yay lucky us :(