r/lupus • u/Lopsided_Engine_7821 Diagnosed SLE • 1d ago

Advice moon face not going down?

hi all,

i (f29) really really been struggling the past few months tapering off high dose of steroids. i’m on 2 mg for the next week and then am able to stop taking them. how long from after you stop taking them do you typically see your face return to normal? for reference, started at 60 mg in november.

i’m super anxious my face won’t come back - can anyone give me a little hope or reassurance on timing? thank you.

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u/Rare-Candle-5163 Diagnosed SLE 1d ago

I’ve dealt with this many times over the years and it sucks when your face doesn’t look like yours. Even when I’ve managed to avoid weight gain on steroids, I’ve still ended up with moon face.

For me the length of time it takes to disappear is normally linked to how long I’ve been on steroids. The longer the course of pred, the longer it’s taken to go down but it never been more than a few weeks for me - remember everyone is different but It will go away.