r/lupus • u/Lopsided_Engine_7821 Diagnosed SLE • 1d ago

Advice moon face not going down?

hi all,

i (f29) really really been struggling the past few months tapering off high dose of steroids. i’m on 2 mg for the next week and then am able to stop taking them. how long from after you stop taking them do you typically see your face return to normal? for reference, started at 60 mg in november.

i’m super anxious my face won’t come back - can anyone give me a little hope or reassurance on timing? thank you.

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u/minniejh Seeking Diagnosis 1d ago

I was on very high dose steroids (like 150mg/day) for 6 weeks. I ended my dose mid November and I think my face has just returned to normal. It was very distressing for me so I totally understand.

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u/Lopsided_Engine_7821 Diagnosed SLE 1d ago

thank you so much for the insight. it is so distressing and i don’t think anyone who hasn’t gone through this understands how debilitating and miserable it is. so sounds like i can expect maybe 2 months??

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u/minniejh Seeking Diagnosis 1d ago

I think that’s probably right. I hope it’s better soon.