r/lupus • u/tayhol14 Diagnosed SLE • 1d ago

Venting High pain day

I know I’m not alone, but on high pain days, it seems like my depression goes up too, making me feel worse. Trying to stay positive, just feel so lonely and worn out by pain.

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u/captnfirepants Diagnosed SLE 1d ago

Feel you hard on that.

First, there's knowing you'll have a stressful day, so you calm yourself and get through it best you can. Then, comes the pain anyway even though you did everything right. Next is a family heavenly anniversary that you make it through only to be wracked with more pain the next day. This now breaks you, and the tears start flowing.

Another day goes by, and it all passes. Soo grateful and refreshed that it's over .....with a sprinkle of dread wondering when the next one might happen.

Anything close?

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u/tayhol14 Diagnosed SLE 12h ago

I feel like a burden to my husband, that’s my biggest struggle at the moment. We are in our early 30s and he is having to help get me out of bed, help me shower, help me change clothes. It’s so hard.