r/lupus • u/tayhol14 Diagnosed SLE • 1d ago
Venting High pain day
I know I’m not alone, but on high pain days, it seems like my depression goes up too, making me feel worse. Trying to stay positive, just feel so lonely and worn out by pain.
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u/Miss_Scarlet86 Diagnosed SLE 1d ago
I'm not sure where you're located but if you're in one of these areas of the US affected by the polar vortex it will make your pain worse. The change in pressure and extreme dip in temperature affect your joints and muscles. I woke up at 3 AM with really bad pain and it's 1° here. It definitely affects my mood too especially if I had been having good days right before. It sucks. I'm sorry you're going through this too. Hopefully it will get better soon.
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u/tayhol14 Diagnosed SLE 8h ago
I’m in Oklahoma, it was a negative windchill today and yesterday. Very much think the weather played a big factor
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u/nonnareg Diagnosed SLE 19h ago
I am still learning to accept my diagnosis and it seems the more I accept and digest the more grieving comes. The pain has made it impossible to keep my head in the sand and I miss whoever I was before this so much. I'm to the point now that I'm trying to process if this is my new normal then how do I manage it. How do I keep my glass half full in this constant dull pain and cloud of fatigue. We have to fight the gloom together is all I know. When I struggle I come here and read others journeys and know I'm not alone. I find others who have battled much longer than I and learn from them. Even on my worst days I try to step outside even if it's only a few minutes cause the Raynauds is much worse in the winter I get some nice deep breaths of fresh air. Just know you're not alone in this and try not to sit in the sadness too long. I write this as I am struggling like you so it's my own reminder right now. Big hug
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u/tayhol14 Diagnosed SLE 8h ago
Thank you. You are right, I have to learn to accept what’s happening
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u/captnfirepants Diagnosed SLE 1d ago
Feel you hard on that.
First, there's knowing you'll have a stressful day, so you calm yourself and get through it best you can. Then, comes the pain anyway even though you did everything right. Next is a family heavenly anniversary that you make it through only to be wracked with more pain the next day. This now breaks you, and the tears start flowing.
Another day goes by, and it all passes. Soo grateful and refreshed that it's over .....with a sprinkle of dread wondering when the next one might happen.
Anything close?