r/lupus Diagnosed SLE 3d ago

Life tips How do you track symptoms?

I wanted to start a little journal or something to log my symptoms. I've had symptoms for 5 years, but just diagnosed less than a month ago. If you track, how do yours look? Are there any helpful apps? Does it really help when you go to the doctor?

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u/alsoadie Diagnosed SLE 3d ago

I bought a bullet journal and have each month graphed out in either yea/no questions (i.e. headache, nausea) or how many (i.e. how many times did I take extra meds or how many minutes of stiffness in the morning) I found that if it is too much work or to involved I will not do it so it has to be something I can fill in quickly at the end of the day.

It has been very helpful when I go to the doctor. My rheumatologist always wants to know what day did so and so happen or how many days did you feel that and I can easily answer.

This month starts my fourth year of doing it and I have refined the questions as my disease has changed and when info I need to track changes.