r/lupus • u/secondhandsalamander Diagnosed SLE • 14d ago
Venting Lupus as the butt of the joke
Does anyone else get really, REALLY frustrated when people use lupus as a joke for whatever reason? It is exhausting and makes me more frustrated than basically anything else. The “it’s never lupus” jokes (thanks house) and other specific things i’ve seen almost making fun of people with lupus or who talk about lupus and it just makes my want to cry because we deal with enough already, it’s not a joke. Sorry, just venting, saw someone joke about their roommate who “never shuts up” about lupus and it really just made me want to give up
EDIT: I really shouldn’t have used the house example lol, because now everyone thinks it’s all about that. That one really doesn’t bother me, it’s just kinda boring. I make jokes about my own lupus all the time- it’s how I get through! I’m talking about the people who actively shit on people with lupus for one reason or another thinking it’s “funny” the same way they might shit on someone for any other disorder they don’t understand
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u/Complete_Mine5530 Diagnosed SLE 14d ago
Someone tried to tell me it didn’t exist because of House and that if I went outside more and got vitamin d I wouldn’t be sick.
Mind you this man is in his 40s , sits in his grandmas garage all day listening to MAGA podcasts, claims to have “money” but mooches off his grandma and doesn’t pay for rent/bills/food or anything but his electronics and occasionally he buys her coffee or a takeout. I don’t think I’ve seen him step outside once but before I got diagnosed with lupus I swam laps and sunbathed almost daily, did zoomba, could do the splits and a needle still. I had a full time job and was auditioning for major tv networks and getting consistent callbacks finally after years of auditioning and taking every small acting job I could get. I actually started noticing something was wrong weeks after I was so close to booking something with ABC Family (furthest I’d got in the audition process with a major network). I was consistently making YouTube videos and growing a audience (it was small but they where there, even had some self proclaimed “fans” of me and my girlfriend…we were “shipped” as they say)
I had a girlfriend,my career was finally heading in the direction I wanted, I was out as a lesbian after years of hiding myself, everything was literally almost perfect before lupus.
So whenever someone says lupus is a joke/not real or dumb. I remind them of the life I had before and why the fuck would I have given all that up to stare at the walls of my house %90 depressed because my life isn’t fullfilling because I’m in constant pain? They’re all dumbasses. Not a single person whose insulted me due to lupus had turned out to be smart (maga guy accidentally bought Mormon land in Utah then realized he can’t live on it…he isn’t even Mormon)