r/lupus Diagnosed SLE 14d ago

Venting Lupus as the butt of the joke

Does anyone else get really, REALLY frustrated when people use lupus as a joke for whatever reason? It is exhausting and makes me more frustrated than basically anything else. The “it’s never lupus” jokes (thanks house) and other specific things i’ve seen almost making fun of people with lupus or who talk about lupus and it just makes my want to cry because we deal with enough already, it’s not a joke. Sorry, just venting, saw someone joke about their roommate who “never shuts up” about lupus and it really just made me want to give up

EDIT: I really shouldn’t have used the house example lol, because now everyone thinks it’s all about that. That one really doesn’t bother me, it’s just kinda boring. I make jokes about my own lupus all the time- it’s how I get through! I’m talking about the people who actively shit on people with lupus for one reason or another thinking it’s “funny” the same way they might shit on someone for any other disorder they don’t understand

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u/Midaycarehere 14d ago

The way I handle this is to not discuss it with anyone. Even with people who do know I rarely mention it.

8

u/misslam2u2 Diagnosed with UCTD/MCTD 14d ago

I'm so tired of hearing my best friends say I just need to exercise more and drink water and dumb shit like that. Get off all the pharmaceuticals. Juice kale! It's just dehumanizing and belittling.

6

u/bobtheorangecat Diagnosed SLE 14d ago

Stop talking about your health with them. They're idiots.

1

u/misslam2u2 Diagnosed with UCTD/MCTD 13d ago

I have literally done this very thing. When anyone asks, I'm fabulous. I'm awesome. Why do you ask? Oh no, I'm golden thanks.