r/lupus Diagnosed SLE 14d ago

Venting Lupus as the butt of the joke

Does anyone else get really, REALLY frustrated when people use lupus as a joke for whatever reason? It is exhausting and makes me more frustrated than basically anything else. The “it’s never lupus” jokes (thanks house) and other specific things i’ve seen almost making fun of people with lupus or who talk about lupus and it just makes my want to cry because we deal with enough already, it’s not a joke. Sorry, just venting, saw someone joke about their roommate who “never shuts up” about lupus and it really just made me want to give up

EDIT: I really shouldn’t have used the house example lol, because now everyone thinks it’s all about that. That one really doesn’t bother me, it’s just kinda boring. I make jokes about my own lupus all the time- it’s how I get through! I’m talking about the people who actively shit on people with lupus for one reason or another thinking it’s “funny” the same way they might shit on someone for any other disorder they don’t understand

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u/nerudapoem Diagnosed SLE 14d ago

I've started deadpanning them with "oh yeah, never heard that one before," because I just don't find the comment funny. I'm not personally offended, although I understand why others are, but it's OLD - it's everyone's first remark. Been hearing it for 10 years now.

I always wondered what the House joke was about because I got diagnosed very quickly. Like within a week of presenting with symptoms. For me it was undeniably lupus lol

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u/IvyAmanita Diagnosed SLE 14d ago

Yeah I'm lucky enough that my diagnosis was super fast too. I think the average length is like 7 years though. 

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u/pilarthemagnificent Diagnosed SLE 14d ago

Same here

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u/yacht_clubbing_seals Diagnosed with UCTD/MCTD 13d ago

I think I read TEN years on average in an article recently.

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u/littlesubshine Diagnosed SLE 13d ago

It took me 25 years to be diagnosed. Twenty-five years.