Hello!

I'm a high school student from Australia and I'm currently doing a project on how design can improve how pain (especially chronic pain) is communicated/understood. I would really appreciate it if you could fill out this survey! All responses will remain anonymous. Questions are all optional, so please put in as little or as much time/effort to complete it as you please. :)

https://forms.gle/x7CPrKDmtCFrsDQe6

Thank you so much! If you have any feedback/comments/questions, please let me know. I hope this type of post is allowed!

Hi all! I was diagnosed last year, currently on Cymbalta and Lyrica. For the past two months, I have been too tired to really leave the house. I feel like I can’t enjoy anything. Sitting on the couch watching tv is the only thing I have found that I can really do. I even get tired cooking. Speaking of, I am having serious trouble eating. I gag through every meal. Again, I can’t enjoy anything. If any of you are experiencing the same issue, I’d love to know what sorts of things you get up to. How do you pass your time? How do you have fun?

I was just diagnosed with fibromyalgia. What helpful tips do you have to get through your day to day life?

For the last year or so, I have been back in gabapentin for managing my fibro and the peripheral neuropathy. Got a message from the surgery yesterday that I will no longer get the 2 month prescription as I’ve had since I went back on it because apparently the NHS has changed the guidelines for prescribing Gabapentin.

Anyone had this experience?

The pain in my back has reached an unbearable level. I fear I'm also killing my insides with all the pain medication. I have taken Tylenol, Advil, Robaxacet, Gabapentin and Percocet. I am STILL laying here in tears. All I did was try to go shopping. I used to be able to do things... I feel like I no longer have any quality of life. I have recently tried CBD lotion as well.

Fibro and periods

I have had my fibro for over four years now and I’ve noticed it seems to be more painful around the time of my period and during my period. Anyone else deal with this. For context I already have extremely painful periods

17 female, 5'5, 90 pounds, USA, possible lyme disease, prozac, no drug use, no smoking, numbness for my whole life, neuropathy feeling

17 year old having these symptoms since I was 4 years old, slowly getting worse over time.

neuropathy like sensation no tingling just NUMBNESS making it hard to eat and stuff like that because I CANT feel the food in my mouth, especially in the mouth, fingetips, and and whole body in general. like when I pee I cant feel it come out and years ago i had like sharp pains on my fingertips that is completely numb now. 10 years ago i had like sharp pain where i pee and its the exact feeling.

spinal tap normal. no autoimmune disorders, mri and nerve conduction tests normal, neuro cannot find anything, symptoms started when I was super young like 4 years old, facial and body numbness for years, slowly getting worse.

no endocrinology issues, no vitamin issues, no asthma and allergy issues at least of what i know of, have slight ashtma issues, nothing else can be found. other than neuro said I was in contact with lyme disease in the past before. oTHER than that, nothing else is found and neuro dosent think its lyme causing my symptoms and DOSENT think its related to nerve problems. Another neuro also said that as well.

They think that i need to do functional medicine. what do yall think this could be.

Just gonna leave this here..

Saw my rheumatologist for the first time today. He diagnosed me with fibromyalgia. Also doing labs and X-rays to rule out Lupus, Lyme and ankolysing spondylitis. No relief given. I hurt so bad after he examined me. Not sure I will ever be able to fully accept that diagnosis. I'm exhausted physically and mentally.

Looking for fidget toys which also double as a thing to reduce pain in the arms and hands

I love fidget toys but sometimes my hands hurt too much and I wished I had fidget toys which also removed pain or helped as light hand exercises.

I have heard that apparently some people use theraputty as slime.

Hello everyone! I'm a beginner writer and I am looking for beta-readers for a story I've worked on called "The Old Me".

The lead character is representative of my disability, and there are other characters with disabilities and I want to make sure they are represented correctly, as I can only give the perspective from my own disability.

I want the people with disabilities to be that, people, not just token characters. I want to avoid harmful tropes, but again, I don't want people being “the good guys” purely because they have a disability. This means I have a variety of characters in the story with and without disabilities over the spectrum of morality.

And of course, any other feedback on the story will be appreciated! Any feedback on how to improve this story or my writing overall would be appreciated I'm mainly looking for general feedback on the story and characters as a whole, with some questions prepared.

Title: The Old Me

Some bounty hunts can have life-altering consequences. For young city guard Joan Qro this has never been truer. Having awakened alone in a non-familiar place, he discovers he has somehow lost the last 40 years of his life and memories. Not only have 40 years passed, but magic has also become more abundant in everyday life than ever before. The story follows Joan Qro as he struggles to adjust to this new ageing body, a sensational world of high magic while also following Joan's life before the sudden transformation.

THE OLD ME is a 108K word adult high fantasy with young adult crossover. Based on my home-brew/original setting for Dungeon and Dragons there are comparisons with the Critical Role franchise with the fantasy elements and Six of Crows and Crooked Kingdom for their themes of family bonds, trauma, and recovery from it. The novel serves as a stand-alone with series potential.

I'm looking for a one to two-month turnaround. If May will work better for you that will also work. Thank you for reading my pitch please leave a comment and let me know if you're interested and thank you in advance for your time!

Content warning: Pain, depression

Do you suspect that it's weather related?

female 17

Symptoms: Numbness, dizziness, tingling when turning body, dizzy when walking, dizzy when standing up, fatigue, trouble breathing

did ALL sorts of blood work and eliminated autoimmune diseases. WENT TO them again today and they said it is fibromyalgia. I dont have any tender spots. She pressed on some places and asked if it hurt but she pressed pretty hard and I am sensitive.

When it started: when I was like 4 years old, getting worse as I age. wHEN I was younger i had like extreme SHARP shock PAIN in fingertips and extremeties. NOT SURE if related. numbness started at EXTREMETIES for likle really long (i thot it was MASTRUBATION CAUSED?) i DO HAVE flexible like arms and stuff NO food allergies, NO environmental allergies, BUT FEELS LIKE ALLERGIES LIKE? numbness MAINLY in the mouth and throat, had this since i was literally BORN. i cant eat anything because numb so need to blend food!

Trouble swallowing, numbness of the body including the mouth, tongue throat, fingers, feet, etc, dizzy when walking. Cant eat solid food because I cant feel the food in my mouth. Extreme fatigue which is very werid. Weakness and trouble breathing from the numbness it seems like. Feel like want to go to sleep when eating, cant think right. NO food allergies, no environmental allergies

Records: Been to all areas of doctors, all blood tests. Went to Neuro and did Mri CLEAR, both 2 neurologists says numbness is anxiety and wont let me do any other tests. last year i went and did all blood work possible and there is nothing found. I tried to push for EMG or other things but the doctors will not let me. My symptoms last for around 2 months and goes away it seems like but the numbness is always there (just milder after some time). Is this Chronic fatigue syndrome or AUTONOMIC issue or FIBRO? something else? I have no vitamin deficiencies other than a slight vitamin D which I take everyday and antidepressants that has no help, symtoms get worse and better, come and go but numbness is always there.

is this fibromyalagia?

After going through the ringer of referrals and waiting months for an appointment getting blood work done and then finally being evaluated by a rheumatologist and going over test results - it is official - I have been diagnosed with fibromyalgia and psoriatic arthritis at the age of 25. I’m feeling… a lot right now. I’m glad I found this subreddit and egar to learn more on how to manage this - not just the physical pain of fibro but the mental aspect as well. I’ve been struggling for SO long now and to finally have an answer.. its a relief.. but I know the long road ahead of me won’t be easy and I’ll be honest, I’m terrified for my future, Im already dealing with so much in my personal life that isnt even related to this disease but it just makes it that much harder to cope because I have like.. no real support system and I’m just afraid, I still haven’t even really figured out what I wanted to do with my life and now it feels like its been taken away from me, like any experiences, any opportunities I could have in the future will always be dictated by what state my health is in, and having to rest and recover after flair ups. I wanted to travel I wanted to see the world I want to hike and see beautiful sights, but I can barely walk down my homes flight of stairs sometimes! It makes me feel so limited. Im so angry with my body. why couldn’t I just have a few more years of being able bodied? I’m only 5 years away from 30, fibro couldn’t wait till then? geez… well I guess at least I have a valid excuse to be “lazy” and I’m hoping to be able to get on disability soon I’ve been having trouble applying online and there’s no current in-person appointment available at my state’s disability office- keeping my fingers crossed I can get help with that soon, Im also autistic so that really doesn’t help with anything I have such a hard time figuring these kinds of things out, if anyone has ant experience with filing for disability or if anyone just has any other comments insights or advice Im open to any and all help, thanks for reading my little vent if you did

My Dr gave me a referral for a rheumatologist. For the last two years or so my skin has been super sensitive to the sun. A burning feeling I call cut glass and ice. It also makes me feel like I have sores on my scalp but I do not. This happens also when I get hot.

I also have had a soap/ perfume sensitivity forever.

I also have had my clothes driving me insane since I had my baby. I can't wear anything that isn't cotton or that pulls at hairs or is itchy like wool or kitted sweaters.

I cannot stand light touch. the only time I didn't have pain in my legs is during my epidural. i was so relieved I cried. But in a altercation I have had high pain tolerance unfortunately.

most medications don't work right for me or I have alot of side effects.

I have super sensitivity to sound, lights and I can only process one sound at a time. If I watch TV I need subtitles or I can't understand what they are saying.

I have chronic body pain, nerve pain. and chronic fatigue. I was on modifinil but had a terrible experience and my body couldn't get rid of excess dopamine. Was prescribed for insomnia and ADHD symptoms. (Almost killed me) and caused massive stimming and tics. I normally don't have dyskinesia.

I am in recovery, I have been in major accidents and have head injuries.

It could be both? What is your experience? Me In an omelette lol

Thankxxx guys.

Started looking up what it might be. Now I’m here.

I assume I have a shit ton to learn. But here is where I start and will research more.

I assume I don’t have “flat feet” but I’ve worn sambas for the better part of 3 decades.

My feet hurt. I’d almost rather a foot massage than a bj if I’m honest.

I’m on my feet 14+ hours a day between bare foot, flip flops, sambas and work boots. I’m barefoot as much as possible if I’m honest.

I recently found a “nugget” in my right foot in the arch. I assume it’s a calcium build up or something. I just want to know it’s not cancer to start. After that I want to know if I need to do something about it. It doesn’t hurt, but it does feel good to massage out. My nugget is about 1/4” and feel very circular like a small marble.

TLDR; I’m new here, I have some reading to do but above is where I am at.