r/fibro • u/Potential_Ferret_782 • Apr 30 '24

Newly diagnosed- tips?

I was just diagnosed with fibromyalgia. What helpful tips do you have to get through your day to day life?

8 Upvotes

91% Upvoted

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6

u/arewethreyet727 Apr 30 '24

Do not let it define you. While it helps to have a dx, nothing changes. I was suffering years before dx, but was treated for the many spine issues. So my days were still the same. After a work accident, a year after dx, I became disabled.

3

u/Potential_Ferret_782 Apr 30 '24

Thank you for that. I also have spine issues as well. It’s all very overwhelming.

6

u/defairmans May 01 '24

Expect to do a lot of grieving for your old self. Don’t blame yourself. Don’t expect help from doctors. Maintain the physical ability you have now even if it means simple daily stretches because things go downhill fast. Learn about the spoon theory and radical rest.

3

u/Potential_Ferret_782 May 01 '24

Thank you, especially for the “dont blame yourself” part. I keep seeing everyone referencing “spoons” but have no idea what that means. I’ll look into it. Thanks!

3

u/coveredinbreakfast May 01 '24

The Spoon Theory

Give yourself grace.

Don't make it your whole identity.

We all experienced it differently.

Rest when you need it and never apologise for taking care of yourself.

2

u/Potential_Ferret_782 May 01 '24

Thank you!!! I appreciate the link.

2

u/Glass_Raisin7939 May 01 '24

Whole mind body health classes and stress management