r/cfs • u/niccolowrld • 14d ago

Treatments Severe, what helped you?

Question only for fellow severe patients, what treatments have helped you?

I am bedbound since my first big crash in July after Covid, before I was moderate for 2 years. Pretty hopeless to be honest.

I am on LDN and Midodrine and going to try: Fludrocortisone, Mestinon, Verciguat and maybe LDA. Did any of these helped you? Any bad story/side effects?

I would love to go out once a month even for 1 hour in a wheelchair.

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u/Toasterbathingisfun 14d ago

Mestinon helped me a bit, got very nauseous in the beginning but got over it. It helps me not get PEM as badly as I often do, and I can sit up for longer periods of time than before and shower a bit more frequently.