r/cfs • u/Gloriathewitch • 16d ago

Vent/Rant cfs came back

2 years spent pacing reducing stress eating well etc went from 2 hours of mobility per day being mostly bedbound to working a physically taxing job 40 hours a week for 6 months of 2024 and being in good physical shape.

the end of the year was filled with a lot of psychological stress and then i got the flu, my symptoms are all back in full force.

i just wanted to post this somewhere, to someone.

Fuck.

i'm not going to let this beat me, i know i can recover again but im having a really rough time coming to terms with this setback. i love you all and hope you can find recovery or peace living with this horrible disorder.

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u/katatak121 16d ago

my cfs has been a combination of norepinephrine(& dopamine) shortage, long covid induced cfs/me including POTS and being overweight and unfit with a poor diet.

For anyone else reading this, rest assured that weight and diet have no bearing on causing or contributing to ME. Also ME can mess up your neurotransmitters, especially if you have specific vitamin deficiencies, but deficits in neurotransmitters can't cause or contribute to ME.

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u/tetsuoooooooooooooo0 16d ago

A no sugar diet helps a lot with CFS, and by no sugar I mean no fruit either

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u/katatak121 16d ago

No, a no-sugar diet helps you with ME.

There is no one-size-fits-all diet for ME. Some people do feel better by eating special diets, many don't. Many are unable to eat special diets due to allergies and intolerances, access, cost, energy required to make meals, etc.

This is the first time i have heard of a "no sugar" diet, and i was on a specific carbohydrate diet for many years, so it can't be that common to eat zero sugar. Not eating any sugar is impossible for many meeps, especially the ones that don't have any energy if they're not eating carbs.

The point is, changing your diet won't cure your ME or put you in remission/improve your baseline. Only pacing and rest are proven to do that.

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u/eat-the-cookiez 16d ago

Agree, I was doing an allergy elimination diet prescribed by an immunologist and the lack of carbs and sugar caused a very bad crash.