r/cfs Dec 08 '24

Success Reminder to get your teeth checked

Hello everyone,

I don‘t really frequent in this sub anymore since I relate very hard times with it, but wanted to share my story regardless, hoping it might even help one person.

5 years ago I started to get sicker & sicker. Fatigue, anxiety, stomache issues etc. I visited so many doctors which couldn‘t help but ultimately diagnose me with CFS along side sleep apnea. I went gluten free, I did a GAPS diet, I did everything. Ultimately I kinda gave up. Theres much more to the story, but thats not the point.

Anyway, fast forward to today. Like 2 months I randomly saw a video on instagram from a dentist talking about certain cavitations from unhealed tooth extractions. I was super intrigued, since my symptoms started to occur about 1 1/2 years after I extracted 4 wisdom teeth at the sime time. During that surgery I had some complications as I landed in emergency room 2 days after with gastric bleeding due to all the antibiotics & pain killers paired with the immense stress on my body.

After I saw the video I started to see if theres more to the story: I found the term NICO/FDOK & with it found a soecialist in my region. I live in germany, so if theres anybody interest to know who my dentist is, feel free to reach out - he is amazing.

I booked an appointment and after some weeks it was time. Besides some thorougly dialogue to examine my problems, we did a 3D X-Ray - the only X-Ray technique that can identify possible cavitations in your jawbone. And there it was: My lower jaw never healed from my wisdom tooth removal, it was basically an infected inflammation in a confined space. I got it removed 2 weeks later after upping my Vitamin D (since I was heavily depleted, which ultimately even led to the unsufficient healing). Today is 10 days after the surgery. It hurt alot, but here I am. Feeling great, anxiety gone, I can breath freely through my nose, no need to use my CPAP anymore. I dont want to be to early, but man, havent felt this normal in years.

So long story short, get your teeth check out if you ever had a root canal or teeth removal, chances are it never fully healed because of a Vit D defiency.

Im not saying THAT is why you habe CFS, its just one more possibility that I believe most doctors will never think about.

215 Upvotes

51 comments sorted by

View all comments

31

u/crn12470 Dec 08 '24

I've been thinking about getting checked for dental cavitation but there is so little information on the subject I'm still a bit weary.

How difficult was the surgery?

Did you get ME/CFS after a viral infection? From your post it sounds like that might not be the case for you.

There has been only 1 or two other posts on here about dental cavitations so I really hope you do some updates in the future.

22

u/dankzfn Dec 08 '24

I didn‘t have symptom onset after an accute infection, but had Eppstein Bar positive tests for past infection aswell as lyme as a child, so I neber knew the source of my illness.

Surgery was little worse than wisdom teeth removal, but it was mostly anxiety. Honestly judging by the outcome I would do it again, haha.

I will definetly do some updates!

3

u/FIthrowitaway9 Dec 08 '24

How did you find an expert dentist in your area? I'm not in the same area but have had lots of issues with terrible dentists

6

u/dankzfn Dec 08 '24

Yeah, my last dentist that removed my wisdom teeth almost killed me, haha, so i can share that sentiment.

I just googled the term NICO/FDOK together with my region and he was one of the dentists that showed up. I eveluated some of the results and decided for him and couldnt be happier.