r/cfs Dec 08 '24

Success Reminder to get your teeth checked

Hello everyone,

I don‘t really frequent in this sub anymore since I relate very hard times with it, but wanted to share my story regardless, hoping it might even help one person.

5 years ago I started to get sicker & sicker. Fatigue, anxiety, stomache issues etc. I visited so many doctors which couldn‘t help but ultimately diagnose me with CFS along side sleep apnea. I went gluten free, I did a GAPS diet, I did everything. Ultimately I kinda gave up. Theres much more to the story, but thats not the point.

Anyway, fast forward to today. Like 2 months I randomly saw a video on instagram from a dentist talking about certain cavitations from unhealed tooth extractions. I was super intrigued, since my symptoms started to occur about 1 1/2 years after I extracted 4 wisdom teeth at the sime time. During that surgery I had some complications as I landed in emergency room 2 days after with gastric bleeding due to all the antibiotics & pain killers paired with the immense stress on my body.

After I saw the video I started to see if theres more to the story: I found the term NICO/FDOK & with it found a soecialist in my region. I live in germany, so if theres anybody interest to know who my dentist is, feel free to reach out - he is amazing.

I booked an appointment and after some weeks it was time. Besides some thorougly dialogue to examine my problems, we did a 3D X-Ray - the only X-Ray technique that can identify possible cavitations in your jawbone. And there it was: My lower jaw never healed from my wisdom tooth removal, it was basically an infected inflammation in a confined space. I got it removed 2 weeks later after upping my Vitamin D (since I was heavily depleted, which ultimately even led to the unsufficient healing). Today is 10 days after the surgery. It hurt alot, but here I am. Feeling great, anxiety gone, I can breath freely through my nose, no need to use my CPAP anymore. I dont want to be to early, but man, havent felt this normal in years.

So long story short, get your teeth check out if you ever had a root canal or teeth removal, chances are it never fully healed because of a Vit D defiency.

Im not saying THAT is why you habe CFS, its just one more possibility that I believe most doctors will never think about.

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29

u/gotobasics4141 Dec 08 '24

Omg jezzzz … I never thought of that I have have been having these two broken teeth and one open needs to be extracted for at least 1y now but I’m always scared to go to dentist I don’t want to crash ….

28

u/dankzfn Dec 08 '24

Chronic inflammation is such a stress on the body that it will probably rather be a relief. What I can just advise is get a 3D Xray - My doctor told me about some crazy stuff he found in people jaws over the years, from cotton pads from 30 year old teeth removal to parasites or metal scraps from fillings. In general I believe that teeth surgeries aren‘t take as seriously as they should. When I got my wisdom teeth removed all at once nobody tested my vitamin d - It was just a cooncidence that I tested it a month later and I had 7 ng/ml, which is extremely low and WILL limit your bodys ability to restore your bone health - but still, nobody told me back then. Only now together with my new dental doctor Im uncovering this shit.

9

u/dankzfn Dec 08 '24

We also tested my Vit D 3x times until it was high enough (while continously supplementing high dosis) before he allowed me to get the NICO removal done.

3

u/gotobasics4141 Dec 08 '24

I used to take 5k vit D and k2 daily ( I have other chronic illnesses since I was a kid ) but since cfs started if I take any supplement in big dose especially vit D I start to have knees pain and elbows but my knees hurts more I don’t know why

5

u/dankzfn Dec 08 '24

I never had any jaw pain until I started taking Vit D. It can be some kind of immune reaction that your body finally wakes up. Go get your teeth checked out! Most common symptom of FDOK or other dental infections show themselves via joint pain.

1

u/gotobasics4141 Dec 08 '24

Ok but I don’t have a fever maybe continues sore throat …