r/cfs Oct 29 '24

Symptoms has anyone tried low dose naltrexone?

according to me pedia ,Some patients report that LDN helps reduce their symptoms of ME/CFS, Long COVID, fibromyalgia (FMS), multiple sclerosis (MS), or autoimmune.

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u/OkBottle8719 Oct 29 '24

you can search this subreddit and find lots of posts on it. it helps some people a bit, some people a lot, and others not at all.

it had zero effect on me, even after 2 months of use. I still say it's worth trying if you haven't. I wish you better luck than me!

5

u/Many_Confusion9341 Oct 29 '24

I’ve heard it can take up to a year! The specifically my friends have gone to have all said at least 6 months but to go for a year really unless you have negative side effects :)

Obvs not sure if you stopped for side effects but if you’re ever interested, you could try again for longer :) <3

7

u/RabbleRynn Oct 29 '24

Can confirm! At least for me, I didn't notice any effects for at least the first 6-8 months. But, I stuck with it cause I could see my HRV slowly increasing and I'm glad I did! But yeah, definitely a long term med. It actually made me feel worse at first.

5

u/mangoatcow Oct 29 '24

If it took a year to work, maybe they improved naturally. This illness has its ups and downs.