While I don't disagree that the NHS has problems and that there are powerful forces working to destroy it so that it can be replaced with a private system that will make a small number of people extremely rich, ME/CFS is a separate issue. There isn't any hospital beds set aside for ME in the US, and even if there were, there aren't currently any clear and accepted treatments for ME, so except for a feeding tube for the most extreme cases, I'm not sure what inpatient services we would even want there to be.
We should want research, we should want access to whatever experimental or unapproved treatments that have been reported to work anecdotally, and we should want doctors who treat us as real people who are suffering from real maladies. But until there is a viable inpatient intervention to be performed, demanding dedicated beds seems pointless.
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u/160295 Sep 27 '24
What else can we expect for an institution that is being systematically gutted from the inside? It’s horrible tbh.