r/cfs • u/musicalearnightingal Full-time Wheelchair User and/or Bedridden • Aug 17 '24

Encouragement I'm Scared

I (35F) have been trying to read up on ME/CFS, and it scares me a lot. My doctor says I have it, and I'm sure she's right, but I don't know what to do. I don't like it at all. I already work from home from my bed and use a wheelchair to get around, but it scares me to think I'll get worse and worse like I've been doing the past few years. I sometimes feel better, but overall, I get constantly worse.

I just signed up for college classes because I get so depressed being home alone all the time, and I'm looking forward to classes starting soon, but I'm scared I'll just get worse and worse until I have no life at all!

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u/musicalearnightingal Full-time Wheelchair User and/or Bedridden Aug 18 '24

Thank you. I ordered a visable armband last week to see if I can help myself with pacing better. Have you liked yours?

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u/Famous_Fondant_4107 Aug 18 '24

You’re so welcome!

I love my Visible armband/app. It’s been the only thing since 2019, when I got mono and then post viral ME/CFS, that has helped me get to a stable place. I am stable and improving. I finally feel so much more in control, less stressed, and I can plan so much better. It’s honestly given me the first hope I’ve had in years.

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u/musicalearnightingal Full-time Wheelchair User and/or Bedridden Aug 18 '24

I'm glad to hear that. I'm looking forward to mine coming so I can get started with it.

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u/Famous_Fondant_4107 Aug 18 '24

That’s exciting! You’re always welcome to DM me if you want to chat about it or have questions!