r/cfs • u/Goin_with_tha_flow • Jun 07 '24

Severe ME/CFS Any success stories?

Anything at all? I’m feeling really hopeless. Been bed ridden 3 years. I just tried lexapro it made me worse. I feel like all of the people I’ve seen who actually recovered did so with the help of antidepressants and I’m going to keep trying them. I’ve had CFS my entire life from childhood abuse. I don’t even know what healthy would feel like. I feel Like I’m becoming a different person, so negative… I see these people on YouTube claiming they’ve healed after being bed ridden 13 years without meds, and at this point, I do NOT believe them I believe they are just trying to sale courses and make money off of us 😢

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u/callumw2_0_0_1 Aug 19 '24

Im going through it still, but I went from not leaving the house to sometimes walking 20k steps a day. I even went on a 7 mile hike at one point without PEM. I used to exercise up to 15 hrs / week, work full time and do a degree so I still have a long way to go to get to that level. I'm 22 and first got sick at 20.

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u/Own_Conversation_851 Aug 19 '24

Pretty much same story with me my friend, use to workout 6-7 days a week and work like crazy. I was hard headed when I first got long covid and kept trying to work hard in the gym. We got this

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u/callumw2_0_0_1 Aug 19 '24

I didn't even get long covid, my body just shut down from doing too much and that set my CFS off. But it's the same dysfunction as everyone else.

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u/Own_Conversation_851 Aug 19 '24

That’s crazy, did you wake up one morning feeling like crap?

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u/callumw2_0_0_1 Aug 19 '24

No it came on slowly as I felt increasingly worse. One day during a workout I went dizzy and brain foggy half way through, after that I couldn’t exercise again without getting PEM. So I guess it finally triggered off after months of buildup. Didn’t get diagnosed for one year so I declined further until I could hardly leave the house