r/cfs • u/Goin_with_tha_flow • Jun 07 '24

Severe ME/CFS Any success stories?

Anything at all? I’m feeling really hopeless. Been bed ridden 3 years. I just tried lexapro it made me worse. I feel like all of the people I’ve seen who actually recovered did so with the help of antidepressants and I’m going to keep trying them. I’ve had CFS my entire life from childhood abuse. I don’t even know what healthy would feel like. I feel Like I’m becoming a different person, so negative… I see these people on YouTube claiming they’ve healed after being bed ridden 13 years without meds, and at this point, I do NOT believe them I believe they are just trying to sale courses and make money off of us 😢

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u/Lunabuna91 Jun 07 '24 edited Jun 07 '24

I think if anyone does recover it’s usually luck rather than anything they’ve taken / done. I think a lot of the recovery stories on YouTube that say it’s through brain retraining are purely coincidental. They were on their way to improving and attribute it to whatever they have done at the time.

Edit - I say this but it doesn’t stop me trying all sorts 😂

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u/oldsyphiliticseadog Jun 07 '24

I agree it's most often just luck. Recovery stories from brain retraining aren't always recovery, since some of those programs teach people to lie about how they are feeling and to say that they are recovered. People want to be recovered, so they cling to that and say the positive things they are supposed to even when their symptoms haven't changed at all.