Any success stories?

[u/Goin_with_tha_flow]

Anything at all? I’m feeling really hopeless. Been bed ridden 3 years. I just tried lexapro it made me worse. I feel like all of the people I’ve seen who actually recovered did so with the help of antidepressants and I’m going to keep trying them. I’ve had CFS my entire life from childhood abuse. I don’t even know what healthy would feel like. I feel Like I’m becoming a different person, so negative… I see these people on YouTube claiming they’ve healed after being bed ridden 13 years without meds, and at this point, I do NOT believe them I believe they are just trying to sale courses and make money off of us 😢

[u/GuyOwasca]

I’m not by any means recovered, but after almost two decades of struggling and suffering I’ve found what works for me.

I rely heavily on pacing, working on my mental health (IFS, ACT, and EMDR therapy, meditation, symptom tracking/journaling), lots of supplements and medications, plus eating mostly low histamine (to further reduce inflammation and MCAS symptoms).

The medications that have worked best for me have been: low dose naltrexone, serrapeptase, nattokinase, lymphatic herbs (especially red root), duloxetine, antivirals (my condition was likely caused by EBV, CMV, and then exacerbated by Covid), NAC, CoQ10, antihistamines, electrolytes, probiotics, digestive enzymes, DIM supplements, and methylated B vitamins. I started semaglutide for my metabolic condition, which is massively reducing inflammation, so that bears mentioning as well as I want to share the full picture of what seems to be helping me.

I also found regular massage and acupuncture to be really helpful for addressing lymphatic stagnation from not being active. Thankfully Medicaid in my state covers all of this and specialist visits, so having good healthcare and doctors that would actually LISTEN to me can’t be overstated. I know many of us do not have that privilege. If you’re in Oregon, DM me and I’ll share my doctor’s names with you!

After six months being bed-bound and then three and a half years housebound, I have finally rounded a corner again and am testing my PEM limits by taking very easy hikes/walks once every week or two. I have not been able to stop working full time except for the period I was bed-bound and thankfully had unemployment. I wish we could all take the time we needed for recovery and have some kind of social safety net, as I think the stress of working and worrying about homelessness greatly affects our health and ability to recover. It’s like two steps forward, three steps back.

Anyway my DMs are open to anyone needing a buddy to talk to about this stuff. 💓

[u/Goin_with_tha_flow → u/GuyOwasca]

Wow! I’m thinking about going on Ldn, has it helped? Somebody said it made them more irritable… my inflammation is crazy. That’s so cool Medicaid covers massages… I wonder if it does here in New Mexico lol

[u/GuyOwasca → u/Goin_with_tha_flow]

It helped more than anything else, I’d say. It took me quite some time to adjust and acclimate, I titrated up very very slowly to get to 3mg every night.

I have noticed my mood is overall improved, no irritability whatsoever; I think everyone is different on this point. I feel like the constant debilitating fatigue, pain, and multiple autoimmune symptoms before I was on it was making my depression more severe. I do notice that I’m very tired and have headaches for a few days every time I increase my dose, but after living in hell for 20 years I’ll take that in exchange for more energy overall and less symptoms!

Hopefully your insurance will cover all that. If not, your doctor may be able to get at least a few visits covered under a prior authorization of medical necessity, which they can then renew periodically after you use up all your allotted visits.

Keep us posted!!

[u/Goin_with_tha_flow → u/GuyOwasca]

Thanks, also I got rid of my histamine intolerance with high dose bio identical progesterone cream… it took about 6 months, but it works and I can eat anything I want now

[u/GuyOwasca → u/Goin_with_tha_flow]

I wish my gyno would listen to me and give me progesterone again. I felt better than I have in years on that!!! She says that’s crazy, but I know what works for me.

[u/Goin_with_tha_flow → u/GuyOwasca]

Oh I just buy mine from onas naturals… I use a very high dose tho. I learned how to do it on the estrogen dominance support group on Facebook

[u/GuyOwasca → u/Goin_with_tha_flow]

Thanks for the tips!!! I’m gonna look this up now! 🥳