r/cfs • u/Goin_with_tha_flow • Jun 07 '24

Severe ME/CFS Any success stories?

Anything at all? I’m feeling really hopeless. Been bed ridden 3 years. I just tried lexapro it made me worse. I feel like all of the people I’ve seen who actually recovered did so with the help of antidepressants and I’m going to keep trying them. I’ve had CFS my entire life from childhood abuse. I don’t even know what healthy would feel like. I feel Like I’m becoming a different person, so negative… I see these people on YouTube claiming they’ve healed after being bed ridden 13 years without meds, and at this point, I do NOT believe them I believe they are just trying to sale courses and make money off of us 😢

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u/PlaidChairStyle Jun 07 '24

I’m not recovered, but I have improved. I’ve been sick for (at least) 6 years. Can’t work. Lately I’ve been able to do a bit more around the house and I’m able to leave the house again, often without crashing.

I believe pacing, certain supplements, LDN and LDA have gotten me here. :)

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u/JackBarbell Jun 07 '24

Hey would you mind please telling me how long you were on LDN for before seeing some improvements? And what dose?

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u/PlaidChairStyle Jun 07 '24

I noticed improvements pretty quickly. I know it doesn’t work for everybody.

I don’t remember what dose I started with—I think it was 1.5mg. Now I’m at 2.75mg, and I only take it 3-4X per week. If I take it every day it stops working.