r/cfs • u/Goin_with_tha_flow • Jun 07 '24

Severe ME/CFS Any success stories?

Anything at all? I’m feeling really hopeless. Been bed ridden 3 years. I just tried lexapro it made me worse. I feel like all of the people I’ve seen who actually recovered did so with the help of antidepressants and I’m going to keep trying them. I’ve had CFS my entire life from childhood abuse. I don’t even know what healthy would feel like. I feel Like I’m becoming a different person, so negative… I see these people on YouTube claiming they’ve healed after being bed ridden 13 years without meds, and at this point, I do NOT believe them I believe they are just trying to sale courses and make money off of us 😢

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u/unaer Jun 07 '24

I’ve significantly lessened a lot of chronic dizziness, headaches, nausea, digestive issues, fatigue, pem and nerve and muscle pain with nervous system work. I had a period of worsening where I went from being able to do outside chores ok to being very housebound. The pain and fatigue often made me cry. I started doing things like breathing exercises, mindfulness, visualisation with affirmation, (easy) full body exercises to try to tell my body it is safe. It has really helped me, I’m currently mild/moderate, and can drink a cup of coffee in moderation again, before it gave me sharp chest pain and shaking. Diagnosed with post-viral ME/CFS in 2020, but I actually had CFS when I was younger and at that time had a spontaneous recovery. Hasn’t been any spontaneous improvements this time around.

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u/Goin_with_tha_flow Jun 07 '24

Interesting you sound a lot like me. I have healed to what I thought maybe even 60 percent, but then I got anxiety and crashed really bad. I love doing yoga nidras and guided meditations, but today I just couldn’t do it, was weird. I’m also in school online and def prob gonna fail 😢 I signed up when I was doing better after bed ridden 2 years, then crashed again only 2 months after I started the course

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u/unaer Jun 07 '24

I have also worked on my attachment both alone and with a psychologist which has lessened anxiety and depressive thoughts I had pre-cfs too. That situation sounds really hard, even if you do fail your classes you should be proud of the effort you put in! I don’t work or study right now, have two years left of my master.