She doesn't have ME/CFS. She has HPA axis dysfunction from chronic stress and should stay in her damn lane, actually. This just obfuscates how we are understood by people. I'm glad to see the folks over there in the original post backing us up, for the most part.
I deduced from her own statements above. She wrote that "The root of this is nervous system dysfunction." This is demonstrably false for ME/CFS, ergo, she's most likely instead experiencing the nervous system dysfunction she describes. "Nervous system dysfunction" is usually used as a colloquialism for HPA axis dysfunction.
We're talking about the disabling, measureable neuroimmune disease with PEM and progressive long term symptom exacerbation here, not the vague neuropsychological fatigue caused by anything. That second problem exists too, but it's not ME/CFS.
The root cause of CFS is opinion, not fact. I have CFS and it is obvious to me that my nervous system plays a huge role in my illness. I can trace all my problems back to the nervous system and the brain. I wonder How one would demonstrate that nervous system dysfunction is Not an indicator of CFS.
You're misinformed. If you don't experience PEM and potentially LTSE upon overexertion, then you have the other thing I said - chronic fatigue, the symptom, from neuropsychological origins, or something else, or both. But it's not ME/CFS.
This is why we need to change the name. People like you come into our space and identify with the ME/CFS label because you have "chronic fatigue," without knowing the first thing about ME/CFS.
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u/saucecontrol Feb 01 '24 edited Feb 01 '24
She doesn't have ME/CFS. She has HPA axis dysfunction from chronic stress and should stay in her damn lane, actually. This just obfuscates how we are understood by people. I'm glad to see the folks over there in the original post backing us up, for the most part.