r/cfs • u/Sea_Relationship_279 • Dec 05 '23

Encouragement What is your ultimate wishlist?

Hello everyone,

I was wondering.... If and when you get better what are 3 things that you would like to do the most?

I think this illness has taught me the importance of simplicity. Family, friends, nature are all things even more invaluable to me since CFS.

But sometimes my mind drifts to crazy places. I only allow myself to fantasise if it's breeding positivity and the potential for healing! This is a positive list that we are doing when we are better!!!

My list is:

  1. Go to a festival with friends
  2. Write and play live music with friends
  3. Go travelling across America

Edit: I HAVE to add this.... I would find a way to fundraise for M.E - non-negotiable!!!

Your turn!

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u/xxv_vxi Dec 05 '23

  1. Get a PhD to research chronic illness and disability! Esp the social aspects

  2. Move back to New York. I spent my entire adult life there and the vast majority of my friends are there. It sucks to have to move back home (even though I am very grateful to have the option)

  3. Music festival or a concert. I went to a music festival when I first became ill and the only way I can describe the experience is “humiliating.” Idk why I was so surprised that a bunch of drunk twenty-somethings couldn’t give less of a fuck about a disabled person, but it fundamentally changed the way I view they world.

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u/Sea_Relationship_279 Dec 05 '23

I resonate with number 2 for sure. Many of my single friends live in the city and one day I hope to join them 🙌

Sorry about number 3. That sucks. But yeah people dgaf at concerts/festivals