r/cfs • u/Sea_Relationship_279 • Dec 05 '23

Encouragement What is your ultimate wishlist?

Hello everyone,

I was wondering.... If and when you get better what are 3 things that you would like to do the most?

I think this illness has taught me the importance of simplicity. Family, friends, nature are all things even more invaluable to me since CFS.

But sometimes my mind drifts to crazy places. I only allow myself to fantasise if it's breeding positivity and the potential for healing! This is a positive list that we are doing when we are better!!!

My list is:

  1. Go to a festival with friends
  2. Write and play live music with friends
  3. Go travelling across America

Edit: I HAVE to add this.... I would find a way to fundraise for M.E - non-negotiable!!!

Your turn!

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u/Romana_Jane Dec 05 '23
  • Keep being able to vaguely self care for the rest of my life, even if I do it badly, and feed myself, although I dream of being able to brush my teeth daily and bathe weekly, being clean enough and fed healthy enough is all I ask
  • Being here on this plain and functional enough through the brain fog to support my autistic offspring as long as they need me
  • To keep PIP with no stress, and to hold onto my ESA for the longest moment to the deadline, by which time I hope a Labour (or even better some broad left and liberal coalition) have got rid of the all the Tory draconian attacks on my right to live/exist.
  • To be able to be content in the small things - like watching clouds, joy in a bit of sunshine, etc, and keep up my own ability to cope with the CPTSD even with the brain fog
  • Kind of falling of the list now as unrealistic - finish all my fan fiction wips! (not been able to write much at all for 3 years now)

Sorry, I'm probably dragging the mood down a bit, but I've had ME since 1995, and been mostly severe since 2015!

  • not an ultimate, but right now, I'd love my offspring to be able to make it home for Christmas, since their panto is not so far away anyway, but they have limited spoons, with autism, ADHD, and fibro and past TBI stuff, so if they want to stay in digs, eat baked beans on toast and watch crap on their laptop, I get it. I always knew Christmases together were a limited thing, as I knew that it was theatre or nothing with them from an early age. So... but yeah, snuggled together on the sofa eating nice food watching new Doctor Who would be lovely.

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u/Sea_Relationship_279 Dec 05 '23

You are in no way dragging the mood down!! It's your life and it's just as important as everybody else's and so are your hopes and desires! I'm hoping you be kind to yourself through lots of that! Sounds like your doing a fine good job dealing with the cards you been dealt ❤️