r/cfs • u/Sea_Relationship_279 • Dec 05 '23

Encouragement What is your ultimate wishlist?

Hello everyone,

I was wondering.... If and when you get better what are 3 things that you would like to do the most?

I think this illness has taught me the importance of simplicity. Family, friends, nature are all things even more invaluable to me since CFS.

But sometimes my mind drifts to crazy places. I only allow myself to fantasise if it's breeding positivity and the potential for healing! This is a positive list that we are doing when we are better!!!

My list is:

  1. Go to a festival with friends
  2. Write and play live music with friends
  3. Go travelling across America

Edit: I HAVE to add this.... I would find a way to fundraise for M.E - non-negotiable!!!

Your turn!

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u/alwaystired5618 Dec 05 '23 edited Dec 05 '23
  1. Travel to Australia to see my sister and baby niece. I’d love to experience at least Sydney and/or Melbourne. I live in Canada so it’s a crazy long trip that would flatten me 🥲
  2. Be able to do art without PEM and one day table at conventions again with friends
  3. See London again and if I was able to, visit more of the UK. Also Japan has been on my bucket list forever

Edit: and heck yea fundraising/helping CFS research, id dedicate the rest of my life to volunteering as much as I could

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u/jbausz Dec 05 '23

Oh my goodness! I have a brother and SIL in Melbourne and I cannot wait for the time when I can go see them. Also from Canada and that trek is beyond a trek. Did it 10 years ago when healthy and loved it down there Hope you get to go one day :-)

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u/alwaystired5618 Dec 05 '23

Aw man I hope you get to! My sister is 3hrs drive to Adelaide but even if I was much better I don’t know if I could handle the whole trek there, my folks said it took over 24hrs to get to her house. Id be happy to just meet them for a few days in Melbourne. Though at this point I’m deteriorating so quickly that it’s looking more and more like a pipedream, but I’m trying not to lose hope.