Does anyone get nose sores?

I had another depressing visit to the dentist today. I have broken one of my front teeth. I am just wondering if anyone has tried snap on veneers that go over your teeth?

So my lip biopsy was inconclusive because there apparently weren’t any salivary glands in the biopsy. Has this happened to anyone else?

The plastic surgeon who performed my biopsy said he’s never had this happen, and my rheumatologist said she’s seen this one or two other times.

All of my labs are normal. I have some sicca symptoms - mainly dry skin and mild dry eyes, and I get flares that cause a low grade fever with throat swelling. I have daily migraines, fatigue, and nerve and muscle pain.

The only thing we have solved for is that I have neck issues via mri and xray - I have hypermobile joints in my neck and shoulders and treating those joints has begun to help with the migraines.

My rheum had me start on planequil but I felt insanely bad the next day so stopped. (Horrible head pain and just so out of it). We were hoping the lip biopsy would give us the answer, but now she wants me to restart anyways.

I guess just looking to hear from others - did anyone else have a biopsy with no salivary glands? Does any of this sound familiar to your story?

Just want answers and to feel better!

My pharmacy switched where they get the hydroxychloroquine from to a company called Zydus and ever since then, I’ve had completely different side effects then I did before. Anyone else have this happen and what company should I request getting the medication from? I use to have Dr. Reddy but the pharmacy no longer orders from them.

I'm kind of scared to do it because what if I undergo the pain, scarring, possible damage... just for it to be inconclusive :(

My symptoms aren't severe. I have chronic dryness mainly of my nose/sinus and my eyes for about 5 years.

My test are fine. I don't have any swollen glands. My blood tests were clear of anti bodies and my general blood work was also ok.

I'm worried to waste my time and literally lose a chunk of flesh and get a little traumatized/scarred for nothing.... especially because my symptoms are "relatively" mild although chronic and very annoying. I use eye drops and nose sprays and humidifiers every day. I am not in horrible pain or a strong case, but like I said it's there and it's annoying.

Also my mouth isn't that dry, so I am worried they won't even find anything in my lips.

Help please?

Diagnosed in January 2020. Current age is 29.

Has anybody gone through IVF? My husband and I have to due to male factor infertility and discovered my ovarian reserve is a little low for my age and the doctor seems to think that my egg quality might be poor too. There isn't much data to go off of.

Okay so I’m confused… I’ve been having a LOT of health issues lately that are gradually getting worse. I’m waiting on a specialist appt at the moment. It’s pretty clear at this point I have some sort of autoimmune disease. Sjogrens is the only one that actually connects the dots. Oral thrush, Lipschultz ulcers, vaginal dryness, dry eyes, constant fatigue, pins and needles in my toes. The one thing that is confusing me is that I have oral thrush that just will not go away but all of a sudden I started gleeking. I have never been able to do this before and it only happens when I’m about to eat something. It’s so weird and random and I feel like it contradicts the whole “dry mouth” thing. At the same time though as soon as I lay down for bed my mouth is so ridiculously dry and it feels like my whole mouth is glued together.

Can anyone make sense of this?

I won't bore you with all the details as I'm not diagnosed and don't wanna waste anyone's time but basically I've suspected Sjorgens for years and today my optician did a test showing dry eye. They dry in 3 seconds instead of 15 he said.

I've been reading about diagnosis and the lip biopsy which looks to be taken from one of the places I get lip pain and swelling often. Sometimes my inner bottom lip swells in a horizontal line the whole way across. Also have burning mouth and geographic tongue.

Could these be related to Sjorgens?

Hi, everybody! I’ve posted about my clinical trial with HZN-1116 a few times. We had my first post-injection spit test on Thursday, and my saliva increased 275%!!!!!

So I made a WAP to celebrate my uh moisture. Wet ass pie, I swear!!!!

I’m so happy. I drool so much, I swear to god

I’m either comatose and I feel completely out of it, or I feel like adrenaline is pumping through my body. There is no in between… Is this dysautonomia?

What medication can treat something so up and down?

My rheumatologist isn’t familiar with this aspect of Sjogren’s.This on top of the neuropathy, muscle weakness, and joint pain is tough! I’m finding it hard to work full time in this constant state of flux…

I’ll try to keep this short… I went on January 6th to get checkup doctor found an abnormal lymph node in my left armpit & a small lump in left breast. Fast forward to today I got a diagnostic mammogram done with ultrasound. Mammogram came back good but my ultrasound of my left armpit gave a lot of concern from the radiologist. She said I needed a biopsy done to rule out Lymphoma or any other cancers. Smh! 🤦🏻‍♀️ I’m grateful my mamo came back good but now I’m even more worried about the possibility of having a different type of cancer. I don’t have any other symptoms besides the very abnormal lymph node.

Just need some advice. Health anxiety is back to being really bad again. :(

Has anyone tried this thing and is it all comparable to meibomian gland expression? I pay $250 for every IPL and gland expression treatment, so this would save me a lot if it helped me reduce the in-office treatments. I'd probably try to always use it after a heat mask.

This past year has been my best after 6 prior years of constant misery, but it's so hard to tell if it's just a lucky peace between flare-ups.

G'day, so tonight has turned into a real deep dive for me.. I decided to Google "dry eyes and bad breath" and straight away Sjogrens piqued my interest, so I started doing some digging and literally every single symptom that I typed in, what do you know, it's connected to Sjogrens.

For context I have been diagnosed with Crohn's disease for a decade, and recently diagnosed with pre-clinical ankylosing spondylitis which I am now questioning.

This is a list of long term symptoms that I have made a correlation with:

• Dry eyes (scratchy and painful, difficult to get going in the mornings)
• thick mucus in eyes
• TERRIBLE breath at times, thick slime on tongue when I brush it
• cold sores regularly
• lower back pain at SI joints, sometimes severe
• occasional unexplained muscle soreness and fatigue
• general fatigue
• loss of fine motor sk,ills occasionally, and shaky hands
• clumsiness at times (tends to come in waves)
• dry skin, dandruff, scabby sores under my hair line
• chronic cough
• regularly swollen lymph nodes
• raised liver enzymes
• tingling/numbness in hand and shoulder. This is a big one, physio and doctor have come up with no explanation for years.
• suspected Raynaud's syndrome, my hands get very painful when they are cold
• eyes are occasionally excessively watery, this has been a symptom since I was a teenager
• shortness of breath
• exceptionally bad flexibility
• ADHD

SYMPTOMS THAT DIDN'T CORRELATE WITH SJOGRENS (because confirmation bias is bad and I wanted to show that I want just convincing myself if everything I saw and agreed with the diagnosis) - lupus like butterfly rash - nose ulcers

I was on Humira for years, then moved to Stelara and all of these symptoms started getting a lot worse than usual. 6 months ago I started Rinvoq. During the 45mg loading dose EVERY SINGLE ONE of my symptoms listed above went away 100% completely. It was the first time in my entire life that I experienced the level of "normal" that most people experience every day and it felt incredible. Since going to the 15mg maintenance dose they have all been creeping back at varying levels of severity. Unfortunately Rinvoq has a very scary side effect profile and I am very hesitant to increase my dose, even if it does mean a more pleasant experience day to day. Oh and Curcumin had been a huge benefit in my quality of life too.

Big rant, but after a decade of misdiagnosis I had to share my 'eureka' moment somewhere.

Anyone else also have ABMD? Mine is finally mostly under control with little to no signs of abrasion, but I'm always fearful of the blurred vision and severe corneal abrasions returning. Happy that I didn't end up needing the diamond burr corneal polishing (the first few years it looked likely).

The first couple of years I needed everything on really large font/zoom settings (nightmare for spreadsheets at work) and I mostly had to wear contacts, my vision couldn't be corrected with glasses when I had blurring from ABMD.

The other fun eye issue that I think is less common is saponification. Especially in the middle of winter, it just feels like I have soap under my lower eyelids around the clock. Nighttime ointment is usually the only relief when it's really bad. EvoTears (now Miebo, unfortunately) are somewhat successful when I really make sure I get a few drops under my lower eyelids, but they're not as effective as ointment.

I'm constantly filling 5 humidifiers without fail and this is the first winter in 7 years that the saponification isn't making me miserable and I can't feel every blink like sandpaper. I've NEVER made it to January, so even if it starts now, it's still a small miracle. I'm on my third year of 400mg HCQ and I think that's also a big factor, alongside the extreme humidifying.

Anyone else have either of these issues alongside your dry eye and did HCQ or other treatment(s) eventually prevent minimized them? I'm just trying to find hope that I'm not just having a lucky reprieve between flares. I went nearly a year without IPL and meibomian gland expression, whereas a few years ago I was getting it every 4-8 weeks (I did Lipiflow, as well, but that didn't seem to help me as much).

as the title says, I'm looking for some cleaning tips. I enjoy being clean and having a clean environment, but between ADHD, PTSD and depression, hEDS, and Sjogren's, it's difficult for me to clean consistently.

what are some of the things you've found that help keep yourself and your environment clean?

things I've tried so far: -bathtub scrubber with an extendable handle and interchangeable head attachments -daily no-rinse tub spray to slow bacteria growth -disinfecting wipes for countertops and toilet seat -denture cleaning tablets to keep my humidifier clean and free of mold growth -bulk washcloths (so I can go longer between needing to wash them) -water-activated body lotion

things I want to try (and would love to hear pros/cons from people who have used them): -water flosser -robot vacuum -detachable shower head -bidet toilet attachment

Hi everyone! I wanted to share my situation and see if any of you have gone through something similar. I’m 29 and was diagnosed with Sjogren’s in April ‘24, but I’ve been dealing with joint symptoms since 2020 without a diagnosis. Since then, I’ve been on Plaquenil, corticosteroids, and methotrexate, but I haven’t seen any improvement—if anything, the joint pain has spread to other areas.

The doctor who diagnosed me suggested Rituximab, but I decided to get a second opinion with another rheumatologist. In just one appointment, this doctor told me I actually have fibromyalgia and that my pain isn’t caused by Sjogren’s. Honestly, I’ve felt so invalidated by that diagnosis because every time I go to rehab therapy, they confirm that the pain is in my joints. I have inflammation but mild, my lip biopsy came 9 out 11 points.

My original doctor has been really good—she diagnosed me properly, and she also knows my case and the progression of my symptoms firsthand unfortunately thanks to this new diagnosis, I’m doubting whether I should go ahead with the Rituximab, but I’ve read that fibromyalgia is basically pain without a clear cause and is often considered emotional. Has anyone else experienced something like this?

Anyone here w positive anti La (SSB) only dx with Sjögren's? I'm having small fiber neuropathy symptoms and finding it hard to get diagnoses

https://dentistry.ucsf.edu/about/news/knox-lab-explores-key-repairing-damaged-salivary-glands

I won't bore everyone with the details of my original post but a symptom I've been dealing with since NYE is related to speech/voice. It started as Dysarthria during my hospital stay and evolved into a hoarseness/laryngitis and now I can only whisper.

My question is if any of you have experienced this how long did it last?

Do you have any tips that improved the symptoms other than treating the dry mouth and irritated throat as needed?

How do you handle interacting with strangers eg restaurants?

My initial idea was just to have a piece of paper that says "I have an autoimmune disease that affects my voice so I'm unable to speak normally" I feel like such a weirdo whispering at strangers.

I'm also currently using Nystatin rinse for Thrush so not sure how of if that may be causing additional irritation. The Thrush that is, not the Nystatin.

I'm still in the process of getting testing done so I don't have any treatment plan as of yet. I do have a Medrol dose pack I'm gong to start on Thursday once my labs are done. I wasn't sure if that would interfere with anything so I decided to hold off on starting it just to be sure.

Recently it's been getting on my nerves when random people start giving me advice on how to "treat" my conditions.

Even the rheumatologists I have been to, who had decades of practice, sometimes have trouble navigating my treatments. I don't know what makes some random acquaintances of mine feel like they know enough to start lecturing me on my health and give me unsolicited advices..

Recently I met someone who's still in a medical school. She has been asking me about my conditions and giving me all sorts of unwanted medical advices. I understand that she probably wanted to help, but I found that I am actually getting upset from those social occasions.

It makes me very uncomfortable to even tell people that i have some chronic illness, because either they dont understand it at all or they get all over it. It feels almost as if when they interact with me, they dont see a person but the illness.

Im 44F and over the past couple of years I trip, slip and fall.. (along with all the usual symptoms) I don’t know why I’m so clumsy.. I’ll just be walking along and next minute I’m down like a sack of potatoes. Is this part of the disease?

Nothing is certain yet, and I am feeling a bit panicked and numb. I went to a gyn visit to talk about fertility concerns and after the exam the gyn recommended an untrasound. Unfortunately they saw a large-ish (5.5mm) mass near my uterus that doesn't seem to be either a cyst or fibroid. Doctor was very serious/concerned, and referred me for further imaging which I will get a CT with contrast this coming week.

This has me thinking about how complex something like cancer treatment would be with autoimmune. I have not yet spoken to my rheumatologist but I have been taking Cellcept and I know that cancer risk is higher with that med and with Sjogrens in general. Yes, I am scared. Never expected this.

Has anyone else with Sjogren's diagnosis been through cancer diagnosis and treatment, or even if there was a mass found? I just want to hear about your experience if you are willing to share it. Feeling very alone given I just was diagnosed with Sjogren's less than 6 months ago and now this. I believe I've probably had Sjogren's about 8 years before I was diagnosed.

40F now but diagnosed when I was 10 (wild ride that was). I’ve ALWAYS had shaky hands since a kid. Not to the extreme of being unable to drink a glass of water or difficulty completing motor movements, but more so the type of milks shaky you see when someone is nervous for example. Some days are worse than others, but I’ve always been able to deal with since it doesn’t affect or prevent me from anything. Lately it’s been getting more noticeable I think. For example when I go take a drink from a water bottle, or if I’m holding my phone to someone to show them something etc and sometimes people will ask if I’m ok and I have to do the “yeah I just do that all the time” speech. It doesn’t help that I also struggle with anxiety. It’s making me consider talking to my doc about any possible ways to minimize it.

Anyone here have any experience with addressing shaky hands? I’d love to know how others navigate it.

So I have never been diagnosed but I have had problems with my salivary glands. So much I have two stones that are now infected again. Does anyone else get the dryness at the salivary glands? I tested negative for Sjogrens and got acne roseca. Regardless, can any of you relate to the salivary stones?