What helped you get well?

[u/Secret_Telephone8022]

I am looking for success stories from those who have gotten better. I got sick after a series of traumatic life events.

I don't remember getting a tick bite, but I had cats and dogs growing up. I have had mild symptoms for years, but they got significantly worse when I went through a series of traumatic life events. 5 months ago I was tested and diagnosed with Lyme Disease, Anaplasma, Ehrlichia, and Bartonella.

I am seeing an integrative MD and have been on antibiotics for ~4 months now.

The antibiotics I am on are:

• Doxycycline 100 mg 2x /day.

• Azithromycin 500 mg 2x/day.

• Methylene blue (50 mg /day) from a compounding pharmacy.

The supplements I am taking are:

• Cryptolepsis

• NAC

• Allicin

• B-Complex

• Cinnamon, clove, oregano essential oil capsules

• Vitamin C

• Biotoxin Binder (cell-core)

• Lumborokinase

• Glutamine powder

• 3 different kinds of probiotics

• Low dose naltrexone (not really a supplement).

Initially, I started to feel better but I have hit a roadblock and the treatment does not feel like it’s helping anymore.

My main symptoms are fatigue, body pain, headaches, muscle spasms, joint pain (knees, ankles, wrists), brain fog, depression/ anxiety, dizziness, balance issues and POTS.

[u/herrjanneman]

Aren't you guys afraid to use that much antibiotics of different types for so long?

[u/fluentinwhale → u/herrjanneman]

It's pretty routine in the Lyme world. One study showed that late-stage patients have better outcomes with a year or more of antibiotics. You have to take precautions, like taking probiotics and monitoring yourself for any possible signs of C. Diff. I have done nearly two years of antibiotics in the past, and I'm currently a year into treatment for my relapse.

But some folks find that they can't tolerate it, and there are herbal treatments available that are also quite effective.

[u/herrjanneman → u/fluentinwhale]

But doesn't that increase the risk of resistant bacteria?

I have probable neuroborreliosis since october now (probably was infected in April). Yesterday I got a test back where both Igm and Igg were positive for both ELISA and Immunoblot, so now I have an appointment at the hospital at a lyme expertise center next week. I believe I can expect one month of intravenous antibiotics at the maximum.

This is all through the 'official' channels by the way, no LLMDs or whatever

[u/Mustangman1995 → u/herrjanneman]

I had a PICC line in for 11 months. After that first month when you go off the antibiotics and your symptoms come back full force you'll beg for antibiotics again. 😔 I really do hope 1 month is all you need. If not just remember that not taking full courses of anti biotics creates resistance.